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Showing posts from 2015

12.29.15 around 11.30am

My land line keeps ringing with stuff I gutta remember! Now MRC in Brockton just called and said they need a letter from any one of my doctors saying I CAN work! I think I've got something of that nature here somewhere in my file draw! I put that on the KJ list 4 tomorrow :)! Then KJ can make a copy and fax it to Brockton MRC! The things this survivor must do cause of his memory impairment, geesh!

12.29.15 after 9.10am

I was gonna do hics (optional) but I was getting real anxious thinking I'm forgetting something! I get a land line after I cancel my trips from Autumn @ ss elder services confirming she is coming here at 3pm for a visit! I can't explain why this happened, maybe my brain found a new pathway for information to flow through! 

12.28.15 after 12.50

I took a cool ride to the store! Cool cause it's getting colder out and kewl cause I'm riding on a very lewl machine :)! I'm still getting random comments saying how nice my bile is! The other day I was ridding to Wg's and my speedo read 20mph! I've gutta try ridding longer distances with it! 

12.26.15 around 9pm

Today I started out by enjoying my Christmas present to myself! I give such great presents :)! I then took a ride to Wg's, picked up  a med and things I go through quickly, coffee creamer and coke zero :)! Tonight I'm gonna find something on tv to stimulate my brain and rest my brain! You just can't understand the amount of hard work it takes just to do easy tasks! The good thing is I CAN do them and I love proving my doubters wrong :)!

12.26.15 around 2pm

I've spent most of today listening to my new wireless sound system, wired though! I'll get it to work wireless even if I've gutta email customer support! I'm a guy though, we can do all without help :)! Now I've gutta take a ride to Wg's!

12.24.15 after 4.30pm

KJ was here this morning and we got my new wireless speaker (Christmas present to myself) all hooked up :)! I haven't got it to work wirelessly yet but I remember when I 1st got my portable wireless speaker I had to have it wired at 1st! I'm listening to it now on I tunes radio, classic rock station, it sounds great :)! I took a ride to the store and popped my 2nd wheelie! Amazingly I didn't get hurt and no damage to my bike :)! Lisa called and asked me over tonight! She is such a great friend, I won't be alone on Christmas eve now :)!

12.23.15 after 12.30

This tbi survivor got severely confused to start the day! I had to be here to receive a call about preregistration  for surgery from South shore hospital! They called early and left a vm with a number to call back! Then I got another call from my insurance provider. I can't write well so I use notepad to do my writing of things I've gutta remember on the spot! The thing that got all the wires crossed in my brain was being told I'm staying the night after surgery! I was under the impression it was gonna be day surgery! So my brain is all fed up now! Between finding a way to remember the numbers I've gutta call, the names of the callers, Just the fact that all my careful planning for this has got to change! My brain is on overload!  

12.22.15 9.15pm

I forget (go figure) if I posted my Christmas gift to myself arrived! I got me a wireless speaker system with a subwoofer for the apartment! It looks pretty cool! I'll work on getting that all set up tomorrow cause KJ is not making a home visit till Thursday and there is no hics cause that is Christmas eve! I do have to finish out my Christmas shopping by getting a few D&D's gift cards :)!

12.22.15 nearing 8pm

Tonight I got my grandson's Christmas present all bought and shipped to the right address or the address Brianne said it was in an email to me. I thought I had put it in my cart at but my cart was m/t when I logged on tonight but I was able to track it down again :)! Amazon then sends me a confirmation email which I then forward to Brianne! When my brain gets a little rest from all this thinking I'll post the play work bench I just bought him :)!  

12.22.15 getting near 2pm

I didn't do hics today, I'm not doing Tuesdays cause of all the appointments I'm having concerning my upcoming surgery! I didn't have anything today but it was a good thing I stayed home. I requested transportation to my surgery and someone to accompany me there! I got a land line from my health insurance provider asking ?s about my surgery! We are about to go from 2015 to 2016 which means I've got two pocket calendars! I knew the surgery wasn't taking place this month so I look in 16's calendar. I found nothing in there so I look in 15 I've got a place where I list upcoming appointments, Thankfully this survivor thinks ahead, I found it and was able to tell Kiana the date and time! What a name she has! When I think of Kiana, it screams out sexy to me :)! Then I asked if she could email me all we taked about. That's what I must do to continue to lead a very successful independent life. Then I can forward the mail to KJ so she will know to write it i…

12.20.15 around 7pm

I didn't do much of anything today :)! The only productive things I did was put value on my laundry card! I just ordered a pizza for dinna too so I didn't even cook today! The pizza just arrived so I'm ending this blog :)!

12.19.15 after 9.15pm

I took a ride to Wg's today to do my weekly shopping! I got home after that and I was remembering that Michaela, my homemaker, had said I need bathroom cleaner, I think! I usually do laundry on Sunday but there's not a lot of it! I've gutta add value to my laundry card so I'm thinking tomorrow I'll take a ride to Wg's, add value to my laundry card then make a decision on doing laundry :)!  

12.8.15 around 8pm

I saw my pcp today! He said everything looks good, my vitals and he listened to my heart and lungs! Then I went to the lab and had blood drawn! They didn't have down to check my psa level! I asked if they could anyway, she said she'd call the doctor and ask. I'm shocked he didn't have that on the order! I don't want to have to kick prostate cancer's butt again!
  Tomorrow KJ makes a home visit and I think she's gonna take me to Colonial Federal bank in Holbrook. That will be awesome then I can set up in quicken the accounts we create, like certificates of deposit and I'll know what the rate will be so I just program that in to quicken and I'll know how much it will be when it matures :)!

12.8.15 around 8am

Today I've got an appointment with my pcp. I've gutta have the driver on the return trip drop me off @ Wg's to get what I forgot to get yesterday! I don't trust my scooter to have battery life after going up the gradual hill on technical park dr. My bike seems to take it np! I just need coffee creamer and fudge stripped cookies :)! My check is due today and it clears by tomorrow. I do well on ssdi but it's still a challenge living on a fixed income but, I do very well!

12.7.15 around 8.45pm

I went to the office and signed my new lease! I was supposed to be there at 9am but I had to call and get it moved to 10am cause I had one of those mornings where I couldn't get out of my own way! As the day progressed the fog around my head seemed to dissipate. I rode to Wg's after I was through signing all that I had to. I then got home and realized I had forgotten some stuff I need! My check is due tomorrow and it clears by Wednesday so I gutta start my monthly peapod order! The thing is that I can't wait for  Peapod order to get what I forgot! I've got a doctors appointment tomorrow with my pcp so I'll just ask the driver on the return trip to drop me off at Wg's! 

12.6.15 around 8.30pm

I never got to Wg's today but I did get all my laundry done :)! I gutta sign my new lease at the office tomorrow @ 9.30 am so I'll just ride my bike to the office and go to Wg's from there! I can park it right outside the door and not have far to walk without assistance of any kind! Kind of a little bummed about the Pats :(!

12.6.15 around noon

I've been kind of lazy on this Sunday morning :)! I'm only now having my 2nd large cup of coffee! I do have some things to get done today. My trips for the week is not one though! I think I did them all yesterday, I just gutta check and make sure they didn't mysteriously change! I gutta get laundry done, take a ride to Wg's, I've got no kind of chips here! Maybe I'll do that after I put the laundry in the dryer! That takes an hour so that's plenty of time to take a ride to Wg's! Then I'll be doing what all my therapists and supports advise me against doing, multitasking :)!

12.5.15 around 9am

I had planed to go to MR's house today, I find myself getting way too anxious about my trips to and from Lexington, its not like it's Quincy or Braintree and I don't have the $ to take a cab so I canceled my trips for today! This anxiety is so tuff to deal with! I've gutta find a way to cope with this! I've fought through lots of things before, I'll get a handle on this too! It's just gonna take a little time! I just feel so safe @ home!

12.4.15 around 7.35pm

Tomorrow I'm going to see MR at her place! She too is a tbi survivor we met at hics! We both loved to go get coffee together when a D&D's was right next door! She doesn't go to hics anymore. The thing about this that's kind of nerve racking is I take one transportation company to Ruggles mbta station, then meet another there that will take me to her place then reverse coming home! My anxiety is off the charts with this! I only had to do this one time before! That's when I went to RC's place and the driver was late picking me up on the return which made me late for my pick up with the other company! They have to get me home but if things don't go right it means a lot of WAITING for "the ride"to correct the wrongs! 

12.4.15 after 5.15 pm

I took a ride to Wg's to check on meds and get some things! I was out of protein shakes, they're not only good for me they sooth my trout too! I needed Coke zero too! That left me with just a little over $50 in my debit account! I guess it's really my checking account but I very rarely write a check but I'm always paying for things with my master money(debit) card!  

12.13.15 around 9pm

I tried to organize all my older cell phones matching the charger to the phone today! I got one phone completed! I've still got two phones without a matching charging cord! I should look into getting some cash for some and just keep the matching phone charger as a spare in case I loose my I phone! I spoke with Maura today and I'm gonna go over her place Saturday! All the way to Lexington! She says she has a computer now, my plan is to go there and teach her how she can do some things with it! She is a survivor as well, I can show her how it helps me then if she wants those things like fb, online calendar, "the ride",checking and booking trips, email ins and outs, blogging! I may take a ride to Wg's tomorrow to get some food stuffs and check on meds so I don't need to do that Saturday!

12.1.15 around 6pm

I'm really impressed with the sound quality from my wireless speaker I went to and started pricing home wireless speaker systems! They a system that comes with two speakers and a subwoofer for only $160! I believe a subwoofer is a key element to have a premium sound system! I've still gutta get to getting more of my tunes from cd to digital but who's in a rush :)! I've still gutta get my tablet working with the wireless speaker I already have cause I'm gonna use that to store all my tunes! I'm just worred about taking up too much space on my I phone! Those speakers at Wm are Sony speakers too! This survivor is gonna build a premium wireless sound system!

12.1.15 after 4.45pm

My angsioty with my impending surgery continues! I sent Joann from south shore urology an email this morning inquiring if anything's been set up yet! I'm supposed to have something implanted in my kidney so it gets totally drained! I've yet to receive a response to my mail! I guess I could land line them but, I'm not a phone guy! This is something I've gutta understand completely and with my memory and lack of writing skills, I depend on email! I've just gutta deal with it all, lord knows this survivor can deal with a lot of issues! What's one more!

12.1.15 after 8.30am

For some reason I had a severe lack of motivation this morning so I'm not gonna do hics today :(! The main reason I'm having the lack is not knowing when I'm gonna have all the procedures I need to get done then my next surgery! I can't live without knowing whats ahead of me so I tried emailing the contact for surgery and forgot her email address. That's another plus about doing all my work through email! My email program saves addresses! I've just gutta know how it starts, character wise! I thought her name was Maureen so I started with the character m and nothing came up @south shore urology so I typed in south shore urology in the search mail option and found out it wasn't Maureen it was Joann@ssurology! I sent Joann an email and cced KJ a copy! This survivor knows exactly what he MUST do to continue to lead my very successful independent life :)!  

11.30.15 around 9pm

I've found a new way to try and illustrate the effects and how to try to cope with living with a traumatic brain injury! I choose from a Varity of posts in my many on line tbi support groups and try and show how others deal with this catastrophic injury! Tomorrow I plan on attending hics! I try to plan all my many medical appointments on Tuesdays, I have none tomorrow so I'm gonna do my best to be ready for an 8.58 pick up to go to hics :)!

11.29.15 getting near 9pm

I nearly forgot, the highlight of my day was becoming fb friends with another survivor! This pretty lady wasn't unconscious for but a few moments but that's all it takes! We chatted for a bit, this babe doesn't have the opportunity to talk and be with others who have a tbi. I think that is a needed thing to progress after suffering a brain injury! I hope I made her feel better! That's what I believe Jesus saved me for, to help other survivors deal with having a tbi! The fact that this babe is so very pretty didn't hurt either :)! 

11.29.15 after 7.15pm

I've been able to get all my laundry done this afternoon! I've still got many issues folding and getting my shirts right after being in the dryer! I now expect the problems and still work on strategies to make it less frustrating! The fact I CAN do it myself helps me to deal with these issues! Plus knowing that many of you had no confidence in my ability to do it independently :)! I love proving non survivors wrong!:) Now I gutta make a late dinna!  

11.29.15 around 11.30am

I gutta do all my laundry at some point today! I've already booked all my trips for the week! That gave me a few issues completing too! Mainly cause the web site, I believe is not very user friendly also cause my computer decided to use a browser I don't usually use for this but it's done :)! I slept well last night that's cause I got off in to dream land dreaming about all the great hockey players I had the opportunity to either play with or against! The most notable would be Rod Langway! He was a bit older than I so it was just one youth hockey game! He went on to have a stellar career with the Montreal Canadians, and Dave Silk! Silkee was an Olympic gold medalist on the 1980 US hockey team! But probably the most impressive one I ever played with was Kyle Viecht this guy me speed than anyone I ever played with or against! He actually could fly on ice! Then in high school there was Mike Breen! His advantage was his family owned Cohasset winter gardens, The local rink …


Today was a normal Saturday! I started the day with my normal two large cups of D&D's coffee then I rode to Wg's to pick up meds and some things to last the week food wise! I came home, turned on the tv and got in to watching all the Rocky movies! I have them all on dvd and video tape but I can't seem to not watch a Rocky movie when it's on! Just the story in those movies inspire me! I cooked up the leftovers from Thanksgiving tonight and it tasted great! The only thing missing was the great company I had on Tging day!

11.27.15 after 7pm

I made Tyson frozen fried chicken for dinna then realized I've got leftovers from Thanksgiving dinna! I'm sure it will stay until tomorrow! This is something that gets so frustrating! I may look at something and know exactly what it is, then loose track of what I'm doing! I forgot, and know what it's for too! I'm telling you this is a difficult, confusing way to live but I'm gonna live a happy, successful independent  life :)!

11.27.15 just about 5pm

I just put all my dishes, pans, knives,forks and spoons away from the dish rack, then washed everything in the sink! That exhausted this survivor big time and there wasn't many too! When you live with a traumatic brain injury many of us suffer from chronic fatigue! I'm feeling all of that right now :(!

11.27.15 around 9am

I had trips going to and from Roxy's meat market in Quincy but I've got way too much to do! I've got a sink full of dishes and I've gutta start washing down all my walls in this place! Joel and Lissy did most of the cleaning up after yesterday's feast, there are just some pots and pans and a few items that need to be done! I got some feedback yesterday asking if my homemaker ever washed my walls cause they're dirty! I'll just take a bowl of warm water and a sponge along with Sprayaway glass cleaner and wipe all the walls down! That's the same as Giant gc and Settles gc that I used for every and any thing!

11.26.15 around 8pm

This brain injury survivor had one of the bestest Thanksgivings eva! I had dinna with two outstanding young adults, my daughter Alyssa and her fiancé Joel! It's been way to long since Lissy and I have spent good quality time together, we did just that today :)!


This has been one busy tbi survivor! I'm having company tomorrow and I believe the place you live reflects on you! I've done a total clean of my kitchen, my table is uncluttered and clean! So big deal right? It's an enormous deal when you have to live with a brain injury! My balance issues make it difficult to move things from one place to another, I've gutta make sure I can remember where things are too! It really wasn't that much it's just it takes me a long time to do even a little bit but I'm having company tomorrow :)! 

11.25.15 around 11am

KJ was over for our weekly home visit! She helped me with a couple tasks that were very troublesome for me! I was able to pay Mass health premium! I couldn't get the right link to pay it myself, I have it saved as a favorite but I'd click on it and nothing! We got the right link and now they're  paid! I saved this link as a fav now! I was also getting a monthly charge for something I had no idea what for, we also got to the bottom of this and canceled the service, that was close to $50 a month! Now I've gutta take a ride to Wg's to get some meds!

11.23.15 around 6pm

I've been to the kidney doctor and he says the reason I develop these stones is my diet! Too much processed food and I don't drink enough water! Fruits would be a good thing to incorporate in to my diet but the only fruit I really like is bananas! Next peapod order I've gutta visit the produce department!   

11.22.15 around 3.30pm

Lisa just called and said while helping her mother clean out her house she found a hockey stick signed by Bobby Orr can she list it on E-bay? I'm thinking that is something I may want! I think I'll look at it, if it looks authentic, offer her $50 for it!

11.22.15 around 10.30am

I gutta do my laundry today, I don't think I did it last week so there's two weeks worth of laundry to do! I should go to the store too but it's gonna rain so my plan is to have "the ride" drop me off at the store after my doctor's appointment! I booked a trip this morning to Roxy's in Quincy to get all the fixings to make my famous crock pot chicken!

11.21.15 around 9pm

I took a ride to Wg's today, booked the only trip I needed to this week cause Thursday in Tg! I'm thinking of booking a trip on Friday to Roxies in Quincy then I can make my famous crock pot chicken! I used to always buy a bag of chicken parts there, it's breast parts and leg parts! I can also stock up on spices from there too! I already have cream of chicken soup here and this crock pot is much smaller than the one I used to make in when I lived in North Quincy! Yes it's long overdue but this weekend Jamie is making his FAMOUS crock pot chicken :)!

11.21.15 around 9am

I got an important task done already this morning! I booked Monday's trip to a doctor I've never seen before (kidney guy)! Today I'm gonna do my weekly ride to Wg's to get my normal things, coffee creamer, sweets, quick, easy dinnas, check on meds! I've still gutta get to work on loading tunes on my I phone too! I ordered another wireless speaker from Wal-Mart! If this works in conjunction with the wireless speaker I already have and sounds primo, it will change the way I listen, store, and purchase my music :)!

11.20.15 around 3.30pm

KJ was over for a home visit and like always it went very well! Again I was perfect on loading my med box! I had to call my doctor to have a script sent to me! I want to load some more tunes on my I phone so I just was using my super common sense, explained how I think to do it and naturally this survivor had it right :)! I want to copy tunes from my vast collection of music cds! I just load the cd I want to get or even I could do individual tracks ,and use I tunes as the program to do it! I must be honest though, I didn't know to use I tunes until KJ told me! I think I would have figured it out though! This survivor knows the ins and outs of working with a computer! I firmly believe working with a computer helps an injured brain in many ways! It helps my problem solving ability cause things go wrong working with a computer and no one can say they don't! I've got to then analyze the problem then search my brain for a solution! I think that's more difficult than a cross…

11.19.15 after 9.30pm

Tomorrow KJ is gonna make a home visit @ 9am then I've gutta take a ride to the store! I don't think I've gutta go to Wg's to satisfy my wants but they could always change :)! It's late for me so I'm calling it a great day :)!


This tbi survivor is so happy now! I had a great time at the hics holiday party then I get home to my land line ringing! That was my youngest girl asking what I was gonna do Thanksgiving day! She and Joel are gonna come down here and have Tg dinner with me :)! I can't tell you how happy that makes me :)! This survivor has not been forgotten about by his kids :)!

11.19.15 before 8 am

Today I'm going to hics and we are having our holiday party :)! All the fixings for a Thanksgiving dinner! Hopefully all my trips work out! They always have a slide show of the past year's events too! I'm gonna have FUN! 


Today I've got an appointment with Dr. Tarr ( new podiatrist) in Milton Ma. My pick up to go is 9.16 am to get there in the town that is really only less than 15 mins away! My appointment time is 11am! Then my return is exactly the time I booked it for, 12pm!

11.17.15 after 4.30pm

I was gonna do hics today but, I wasn't feeling all that well this morning. I had some anti biotic here from my surgery so I took one earlier and one an hour ago and I'm feeling much much better :)! I was nearly out of a med so I took a ride to Wg's to get it! I like going out on my bike! It may not be two wheels but I still get the wind in my face :)! One of my multi outlet surge protectors just up and stopped working! It was a little more than I wanted to spend for one but now all my electronic devices are either working or charging :)! I had to get down on the floor and reach behind my desk to plug the new one in! Many wouldn't believe this balance impaired tbi survivor could do this! I can't say it was easy but my determination is like no other :)! 

11.15.15 after 5.10pm

I decided I'm not gonna do laundry today! There's not enough to constitute spending the $4 for! If I find I'm not gonna have clean cloths to last the week, there's always tomorrow! Peapod delivered my order now I've got plenty of goodies :)! 

morning routine

I've got a morning routine I must stick to so as not to forget something important! First thing is to start the coffee maker! Then check my email, my fb page, my bank accounts, then coffee should be ready! I have my coffee but with my 1st cup is when I take my morning meds! I check my mail and my fb page throughout the day too! I'm in many tbi support groups and I want to be there to help another survivor with anything I'm able to :)! Each day may have an added task but I try to incorporate all these things too :)!

11.15.15 around 10.30am

I've got a peapod order coming btw 11-1 this morning! I just get so anxious when just about anything I've got to be prepared for is gonna go down! This is great though cause I'm out of good quick easy things to eat! I just forget if I got them :(!

11.14.15 after 3pm

I've taken a ride to the store, that was fun and chilly. Something I've always wanted to do is network all my devices so they could share files. I've tried before and it just didn't work! I even tried to find a course I could take on this but everywhere I tried was part of a degree program! I'm not looking for a 2nd career just a way to learn how I can get all my devices talking to each other and sharing stuff! An on line coarse would be just what I'm looking for! Does anyone know of any? 

11.14.15 before 10am

There is something I must do today, that is take a ride to the store! I've been listening to my tunes this morning and the Creed song "my own prison" has a lyric "should have been dead on a Sunday morning"! I think my motorcycle accident was on a Sunday morning and I wasn't expected to survive! I've also gone to Not that I need anything just checking out sales! They have a pack of three flash drives for around $20, I think 3or4 gigs too! That's something in time I'll use so I put it in my cart! I want to avoid paying shipping costs so I've gutta get some other things too. That's what I like about on line shopping! When it finally gets from my injured brain to my fingers, everything I thought of before is saved in my cart :)!

11.13.15 after 9pm

I've got nothing I HAVE to do tomorrow except rest! I'm on a emotional roller coaster with all the medical issues I'm dealing with now! I think me living with a brain injury seems to magnify it all!

11.13.15 around 8pm

I've been getting real anxious about my upcoming procedures and surgery so I paid all my bills this afternoon and made a peapod order! I can't stop thinking about how much its gonna sux having to wear a bag to drain my kidney! 

1.13.15 2.30-3 pm

I had my appointment with Dr.Tracy! It was kind of confusing, I guess I'm gonna have another procedure done before I have surgery! Its my left kidney and I guess it has to be totally drained! For this I've gutta have something put in it then I'll have to wear a bag that catches all that is in there! Jesus, I've been through more than my fair share, I don't know how much more I can take! Maureen will call me with the dates and times of all I must endure!

11.13.15 around 8am

Today I've got a dr.Tracy appointment probably get a date for my surgery! I get so anxious about my trips to and from there!  I've got a 10.15 pick up to go for an 11am drop off then a 12.29 return time! I'm dealing with the anxiety  listening to my tunes!

11.12.15 around 6pm

I did hics today! It seems like foreva since I've been able to attend groups! I kind of forget the groups now cause my concentration has been seriously altered! KJ was able to print out a copy of my checking account statement so I had the driver on my return trip drop me off at the office so I could give it to them! Then I was scooting home from the office and my scooter lost all power :(! My right foot is giving me all kinds of pain, the last thing I wanted to do is push my scooter any distance! I pushed about 100 yards when a neighbor saw me and helped to get it home! Big thank-you to KJ for getting that done for me! I'm telling you she really makes this very difficult life bearable :)!  

11.11.15 after noon

KJ was over for a home visit and she accompanied me to my meeting at the ramblewood office to recertify! I'm glad that she was there cause a lot of information was given, this was different than anytime I've done this in the past! They wanted me to sign a paper giving them permission to look at my checking and savings accounts! I was very uncomfortable doing this so I asked if there was another way to satisfy their need for this. I've got to get statements of my accounts dating back a couple months, enter KJ. She is gonna get me the documents I need the only thing I'vc gutta do is call Wg's, have them print out a list of my scripts for the last few months! This survivor's life would be a mess without the great support from KJ! 

copy of mail I sent to "the ride"

hello, I've just got commend driver T-181 on the service I received today! I went to Weymouth mri to get a cat scan of my kidney! They took me right away and my appointment wasn't till 1.30pm! They started the procedure well before 1.40 pm! My return trip was not till 3pm! Driver # t181 saw that I was ready and asked if I wanted to go now! I've been relying on the ride for 14 years now and never have I got better service than I got today from driver # t181! have a great day Jamie

1.10.15 after 4pm

I've been to get a cat scan and this time it was much different than the last! Last time I had to strip down naked and put a Johnny on, take of all my gold they even put tape over my ear piece! This time they did none of that :)! They asked me if I was wearing a cell phone but the machine detected my pump in my gut! I was done at 1.30 pm and my return wasn't till 3pm! A driver that knows me asked if I was done and called dispatch to see if he can take me now! T-181 was the drivers ID# I'm tying to get in my mail now cause I want to send a letter  them now but yahoo mail is     not working very well!

11.10.15 around 9am

I'm getting another cat scan of my kidneys today. My check cleared today, it usually clears a day after it gets deposited but no complaints here! I'm not coming back from Weymouth MRI till 3pm. I've got my phone to keep my brain stimulated though :)!

11.9.15 after 8pm

Tomorrow I'm having another cat scan of my kidneys done! I'm trying to change my eating and drinking habits! Today when I wanted a soda I had a bottle of water! I'm gonna try to make a vegetable every night too! Hopefully this will help to keep me stone free!  

11.9.15 around 9.30am

I've got some catching up to do today! 1st I gutta trim my beard then get in to laundry! I've got my homemaker coming at 4pm I could have Michaela do it but this survivor will do everything he's capable doing himself by himself! I gutta call the Ramblewood office too, I need to make an appointment to recertify! 

11.8.15 around 7pm

I never got to laundry today, it's been kind of a blauh  day! I didn't even trim my beard this morning! I've got tomorrow to do these too though! I'm not doing the YMCA the whole month of November so all I've got tomorrow is Michaela ( homemaker) coming at 4pm! I gutta get laundry done tomorrow! I did take a ride to the store today and a very little picking up but I pick up as I go so there's never major picking up here unless I spill something! 

11.8.15 around 10am

I only had to check and make sure my trips this week were correct on "the ride's" web site! I had to transfer money back from my savings to my checking cause of it being the end of my pay period! Tuesday my check should be deposited in my account! Then I'll take whatever is over $2,000 and put it in my savings! It always seems though when it gets to the end of my pay period, like now, it goes back to my checking! I'm still living well within my means though :)! My largest withdrawal from my checking, besides rent, is now $277. for my life insurance policy!  That's still less than I was paying the IRS a month! If I remember correctly I was GIVING the IRS,with fees I had to pay, over $380. a month! I look at that as one replacing the other so as not to change the way I must budget my funding :)! This growing older tbi survivor has still got a good head on his shoulders :)!  

11.7.15 around 9.30pm

I booked all my trips for the week tonight! That gives me a head start on tomorrow's tasks. I'm having another cat scan of my kidney on Tuesday then I'm seeing the doctor on Friday. I think that will be about when I'm gonna get cut open(schedule surgery)! Wednesday night is karaoke night at hics :)! I am thinking about doing "Iris" by the go go dolls and "everything you want" by vertical horizon! Then hics on Thursday. Tomorrow I've gutta do all my laundry UGG!  

11.7.15 near 5pm

I've taken a ride to Wg's and it felt good to get the wind in my face! I came home and started to feel kind of bummed out! There are times I feel all alone :(! Since Lisa moved to another building it seems nobody comes to visit! I then started playing my tunes I've got on my phone with my Jabra speaker! I've just gutta think of all the good I've got in my life today, but sometimes that is even hard for me :(!

11.7.15 around 10.30am

I got up this morning, after I started my coffee maker, I started listening to my tunes I've got on my I phone! I've gutta make sure I don't forget I've gutta make sure my phone is synced with my music on my computer! I'm just really impressed with the sound quality of my Jabra portable speaker! I think there is a karaoke night coming up at hics too! I'm thinking of doing counting crows "long December" and ginblosems "till I hear it from you"!
   Today I'm gonna do my weekly Wg's trip to get food and other necessities, I've just gutta be careful cause it's the end of my pay period! I just can't get my luxury items like M&M's! They average about $5 a bag! I just gutta get some Pop tarts and hand soap! Lets see if I stick to it! Then I might go back to working on getting my tablet to work with my Jabra speaker! This tbi survivor has plenty to keep his brain busy but I've just gutta work on focusing on the task at…

10.6.15 after 9.30pm

I joined another tbi support group an fb! This one looks like the one to be more active in! I donno how many I'm in how, it's gutta be 10-20! Plus the tbi news group where I learn the most recent happenings concerning traumatic brain injury!

11.6.15 after 9pm

I started researching my latest health issue and posting my findings on fb! I firmly believe if you have health issues you've got to learn as much as you can about it! I've been researching kidney stones!

11.6.15 around 5pm

Dr.Tracy's office just called and said I've got an appointment on 11/13 at 11am! I tried writing it in my pocket calendar but it's not legible that's why I'm trying to type it in many places I frequent! I also put it in my online calendar! I'll know I'll have something by the scribbling on that date and if I can't remember what, I know to go to my back up places :)!
   I've listening to a classic rock station on I tunes radio on my phone with it working with my new Jabra speaker wirelessly all day! I'm just thoroughly impressed with the sound quality coming out of my new little gadget!  Ive gutta start loading songs from my large collection of music cds!

11.5.15 after 9.30pm

After I got no showed by "the ride" this morning I had to figure out why my scooter didn't have a full charge! I remember having these issues before about a year or so before and I remembered what the fix was! I remember there being connection issues with the charger! I looked at the charger and sure enough the cables weren't seated properly in the charger! So lesson learned, if I plan on using my scooter the next day, check all connections on the charger the night before! Then I took a ride to Wg's to pick up a med The songs I put on my I phone were not on it, only the songs I purchased were there! I had to figure out why they weren't! It seems I've got  to turn on my computer before I disconnect my phone from the usb cable to my computer and give I tunes a chance to sync with my I phone! So today I worked my memory by remembering what caused problems in the past with charging issues on my scooter and I worked on my problem solving skills figuring out th…

11.5.15 around 5pm

My my land line was ringing and I didn't recognize the number so I let it go to vm. It was Weymouth mri calling to confirm my appointment for my cat scan on Tuesday the 10th! They left a number to call back but even that takes a lot of work for me, it's not like I can just write it down, I've gutta open notepad and type it then name it something I can remember! I'm having a cat scan of my kidney done on 11/10  at 1.30pm!

11.5.15 around 4.20pm

This morning suxed! I was all ready for my trip to hics, door buzzer went off, I sad I'm coming down now, I get on my scooter proceed to the elevator, door opens on the 1st floor, I get off and my scooter suddenly looses all power! I'm forced to walk from the elevator to the front door with no assistance, say to the driver " my scooter ran out of power, just let me go up and get my walker". I had to push my scooter back on the elevator then in to my apartment, grab my walker, then lock my door and get back on the elevator then I get down and look for the driver and he's no where to be found! I immediately call NEXT and they said I was a no show :(! Granted I don't move very fast and I tend to fumble around locking and unlocking my door but I don't think it was five minuets total time and I got no-showed! Worst of all I got warned last night about my attendance at hics cause it hasn't been good as of late cause of all my surgeries and complications fro…

11.3.15 after 4.20pm

After the bladder leakage this morning I had to do a lot of rescheduling of appointments! I was able to find phone #'s for all the places I had to! One of these was difficult for this memory impaired tbi survivor! I didn't know the name of this place also all I knew was the address! I had been there before so a light went off in my brain and guided me to look back in my pocket calendar for anything relating to imaging, kidney, or cat scan! I found something under imaging from back around the time I had the last cat scan! This survivor has got to give himself a lot of outstanding credit for #1 remembering that I may have this # someplace, what to look for, and where to look! I've said this before and I'm saying it again with a big smile on, thank-you Jesus for not letting this catastrophic injury rob me of my intelligence! I may be living with a traumatic brain injury but, I'm still getting smarter every day :)! That's what I've done today plus I've take…

11.3.15 around 10.50am

Today, being my Bd should be free of any problems and issues that cause great stress. I knew that was not gonna be the case for me when I got up and realized I forgot to have my coffee maker all set to just flick the switch on this morning! I forgot to get it all ready last night! Then as I was getting ready to start my day, go through my check list, phone, fanny pack, check to make sure everything I need is in there, scooter ready to roll, door clicker (automatic door opener) readily available, I lost control of my bladder! I couldn't possibly go through a long day like this so 1st I've gutta call "the ride" to cancel my trips, I've gutta cancel all of them cause I was going from the doctor's office to the cat scan place! The line was always busy and that doesn't usually happen! My phone rings, it's "the ride" asking me if I'm still going today, I explain I've been trying to call and cancel but I couldn't get through. Then I'…

1.2.15 around 7pm

I'm gonna be 57 years old tomorrow at 10.30 am! It's quite a different feeling now as apposed to when I was a lot younger! Your B-day was something to look forward to now at my age I dread seeing the years fly by :(! Michaela was here and it was time to do my bed sheets so she did all my laundry this week :)! Tomorrow I've gutta have another cat scan to find my remaining kidney stones! First I'm going to my podiatrist then from there "the ride" is supposed to take me to the cat scan place in Weymouth Ma. It's days like this that gets me really anxious! I tend to get real nervous about getting left at one place and them not getting me to places on time! This survivor will deal with it though just like I've been able to deal with everything this difficult life throws at me. 

11.1.15 after 9pm

I didn't do laundry today cause I think tomorrow Michaela dose my bed sheets! This survivor is way too thrifty to pay to do laundry two times in one week! If it's not the week to do my bed I'll ask her to start it for me. I don't expect her to stay until the dryer finishes it's cycle but it's gutta be done! Today I kinda took a day off from doing anything :)! I did watch some football though! This brain injury survivor couldn't tell you what games I watched though, I forget! I booked all my trips last week for this week so I didn't have to do that, I just checked them to see if they mysteriously changed! Tomorrow I should get a response from Colonial bank! Then I can go back to work on investing my money! Thankfully it was all email cause I now forget what I asked! I could go in to my sent folder to find out but my questions will be in any reply I may receive! That's another reason why this survivor relies so much on email, I tend to forget things s…

10.31.15 around 9pm

I took a ride to Wg's and naturally forgot a few things go figure! My mind is just fixated on investing my funds! I got home and went back to and emailed them a few questions I've got! Tomorrow I think I'll land line them to find out exactly where they are in Holbrook! Tomorrow's Sunday so I'm gonna have to WAIT to do more on this :(! I tried my new speaker with my tablet and couldn't get it to work! I'll keep on trying, there's no quit in this survivor! I'm using it now with it hard wired to my IPhone on a classic rock radio station! It's truly amazing the sound quality from this little guy :)!  

10.31.15 after 3pm

I finally got myself organized and somewhat ready to start my day! It's just that living with a traumatic brain injury I get distracted very easily! I just don't have or trouble staying focused on the things I must get done! I need to ride to Wg's to pick up some quick and easy dinnas and some munches, junk food! I've got no kind of chips here! That's gonna change :)! 

10.31.15 around 11am

I've been doing some research on savings banks! There in one in Holbrook, Colonial federal savings bank! They seem to have the BEST rates on Cd's, money markets, and savings! This would be a bank I could hop on my bike and take a ride to :)! They have on line banking too! I guess this is kind of very important so I think before I do anything I'm gonna discuss it with KJ! Maybe I'll end up going there and speaking with an investment councilor! Then I could be sure about transfer of funds:)! I think it must be near the old S&S IN Holbrook! If it is that would be an easy ride cause I used to scoot from S&S in Holbrook! I'm gonna have to WAIT till next week anyway this being Saturday! Today I'm gonna take a ride to Wg's to do my weekly shopping, check for meds, and have fun ridding :)!  

10.31.15 around 10am

I couldn't bounce right up this morning I just stayed in my queen size memory foam bed relaxing for a while! It's kind of weird I used to dream of a life like this, no where I have to be, basically very little responsibilities, no one to answer to, I'm really free to do whatever! The thing I feel like doing now I can't though! I feel like getting on my Harley and taking a Saturday morning ride! Go out to breakfast and leisurely drink coffee and order eggs benedict! I gutta think about going to the registry and taking the test for my motorcycle permit! Then get my bike going then you'll see one extremely happy tbi survivor :)!    

10.30.15 around 10.45am

My anxiety about my cat scan on Tuesday is over :)! I got a call from the cat scan place confirming the appointment! I asked the address and made a notepad of it, saved it as something that would spark my memory! It really doesn't matter though cause I then booked my trips for this! This survivor knows the things he must do to continue to lead a very successful independent life :)! 

10.30.15 around 9am

I'm waiting to hear back from at least one of two people as to where my cat scan is on Tuesday! My brain wants to say it's performance dr. in Weymouth but I'm just not sure! Things such as this tend to get me really anxious! I've just gutta realize I'm doing everything I can to find it! If my first try (mailing KJ and my contact at ssu) doesn't work, I'm gonna have to use  a land line and phone ssu! This survivor has learned the hard way over the years to have a back up plan then a back up plan to back up the back up plan! It's not till Tuesday so I've got till Monday noon to be able to book trips for Tuesday! I have yet to decide what I'm gonna do today! I'm thinking of taking myself out to lunch at D&D's right down the street then go to Wg's and get the things I forgot to yesterday! I'm not gonna let my anxiety take control though! I've got plenty of time to do what's right and makes me happy and feeling good about …

10.29.15 after 10.30pm

I've gutta have another cat scan on Nov. 3rd, my Bday! I was looking through my destinations with "the ride" and I thought it was entitled imaging! I found nothing with that title so I sent mail to KJ to see if she knew, then to my contact at ss urology! If I don't hear back by 3pm tomorrow I'm gonna have to use a land line! Checks and double checks this survivor wants to get everything right! Oh and today my external speaker got delivered :)! It's charging now. This will not only work with my I phone but my tablet and all my notebooks too  :)!

10.29.15 around 7.30pm

I got up at 5am to empty my bladder and couldn't! Then at 7am, same deal! I started feeling cramps throughout my whole urinary track! I couldn't do hics feeling this way! Then around noon I tried it again. I think I passed a stone! Talk about intense   pain I felt it! After going through that my track feels much better but what an ordeal this was! Then I rode to Wg's to get a med I ran out of! This is the med I'm not supposed to miss a dose of! Went to the office and put value on my laundry card! I still gutta make some dinna!


KJ made a home visit, my meds were perfect as always, she took me to Citizens bank too! That's okay cause I know what I want to do with it! She said the rates are not good there now and suggested another bank! I'm having issues remembering the bank now! I think it was city something not city bank though! Thankfully KJ was there, she will know! I can research all banks online too! I just deposited in my savings for now! Now I'm gonna go to hics for a party :)! 

10.27.15 around 9pm

Tomorrow KJ makes a home visit and she's gonna take me to citizens bank! I'll be able to invest my money there and be able to track all of it with my online account with Citizens bank :)! Just how I dreamed when my trust was set up :)! Then tomorrow night I'm going to hics for a Halloween party :)!

10.27.15 around 7pm

I love shopping on line! I just bought a portable wireless speaker for my I phone! This will be great when I'm outside and a few of us are just sitting around, like at cookouts or waiting for something like "the ride"! I buy from Dell cause I've got a charge there! I always pay the Dell bill in full after my check gets deposited! The great thing for this survivor doing it online is I can see all the information so I can be sure it's right! This time I forgot to type apt #30! I was able to catch it by seeing it! This survivor has gutta be able to use all of his senses to be able to get things right :)! 

10.15.15 after 10.20pm

I didn't do laundry today cause I've got all day tomorrow to do it! I'm gonna take the whole month of November off from the YMCA cause I've still got some kidney stones that the doctor can't do a laser surgery he's gonna have to cut me open :(! Because of this I've got many appointments so I decided to take Tuesdays off from hics and try to get all of my appointments on Tuesdays!

10.23.15 around 2.15pm

I didn't get up till after noon today! I guess my body was telling me "rest"! I'm not doing the YMCA for a while now! I've gutta get through all my medical issues first then have the doctor give me the okay to go again :(! I've got more kidney stones.

10.22.15 after 10.15pm

I've been to Braintree rehab today for my pump refill and I'm still amazed by how Shannon does this so easily and painless! On the trip home there was a Nirvana song on the radio! Got me kind of nostalgic! I did lots of goggling and posting on fb about Kurt Cobain! That was the mid 90's which was a great and fun time of my life! I was making a GREAT    income and was having the time of my life :)!


Today I'm going to Braintree rehab to see Shannon for a refill on my pump! I'm still amazed at how this pretty young lady can stick a needle in my abdomen and find the tiny hole where the med goes in! 

10.21.15 around 3.30pm

KJ made a home visit this morning and I had lots to accomplish! I had a vm with the date and time for another cat scan of my kidney! Not being able to write well I leave vms like this on my machine so KJ can hear it then write it in my pocket calendar! I had to then call dr.Tracy's office to schedule an appointment with him after I have that done! The great thing is, I've done this so much, Maryann at south shore urology knows to email me the date and time! Then I can forward that email to KJ and she will write it in my pocket calendar! This survivor is fully aware of all the tools and supports available to him and how to use them on the way to leading a very successful independent life ! :)  

10.20.15 after 2.10pm

I've been to Dr.Tracy's office, explained all the issues after the last surgery and he concluded it was all from the stint he put in to prevent another blockage from occurring! He suggested it be removed and he could do it now! My angsioty really goes off the wall now! I've got a 12.20pm pick up time I've gutta be ready for, and how he dose it is frightful! He takes a thin metal tube (wire like) inserts it through my penis and grabs the stint, no Anastasia! I survived that procedure just by barely! There are still stones in there, I've gutta have another cat scan to find them then more surgery!

10.19.15 around 8pm

Michaela was over and washed my bed sheets and all my other laundry too :)! I've still gutta put it all away though! It shouldn't be too too bad though, she leaves them nicely folded on my freshly  made bed! I can't do hics Tuesday or Thursday cause of doctor visits that are both mid day visits! Tomorrow I'm going to the doc who performed the last surgery and Thursday I go to see Shannon to get my pump filled! I've gutta remember to ask for a note saying it's okay for me to do my workouts at the YMCA! Now to do a late dinna! 

10.19.15 after 10.20am

I called my pcp's office about needing a script. I had to deal with the automated phone system but I think I got the right ext. Doesn't anyone answer the phone anymore? I had to leave a vm explaining my needs! The thing with this now is I'm not sure if my med will be ready! I guess now the thing to do is call Wg's! Nothing is ever easy for this survivor! Wg's just called and said my script has been delayed, they will call the doctor! They didn't say what the script was for though! I guess a land line to Wg's is necessary!

10.19.15 around 9.30

I went to Wg's yesterday to get a med I was out of. They said they had to call the doctor cause I guess the script had expired! I've got no call from Wg's saying a script was ready for me! This is for omeprazole which helps to keep my trout from catching on fire! I'm thinking I should call the doctor's office before I take a ride to Wg's! My trout has been on fire at night without this med! This survivor takes care of all his own issues :)! This is one of those screwy holidays though, I'm hopping someone is in the office today!


Great Patriots game last night! They're such an exciting team to watch! This is so great cause I went through the lean years of the 1960's and 70's! From Jim Nance to Jim Plunket to Steve Grogan to Drew Bleadsoe and now I've got the pleasure of watching the greatest QB of all time in Tom Brady!

10.18.15 around 6.45pm

I didn't do laundry today cause I'm pretty sure this is the week my homemaker (Michaela) dose me bed sheets! It costs me $4 to wash and dry a load so I'll have Michaela do it all tomorrow! I've still gutta get to the office here to put value on my laundry card! I can't go to the YMCA until I get a doctors vote saying I can! I'm seeing dr.Tracy ( the doctor who did my last two surgeries) on Tuesday, I've got many issues I need to discuss with him and I'll ask him to draft a note clearing me to get back to working out three time a week at the YMCA! I've still gutta get to Wgs too at some point tomorrow! Michaela isn't due till 4pm tomorrow so I'm gonna plan on taking a ride to Wg's tomorrow and either on the way to Wg's or the way back, stop at the office and load up my laundry card with value! I can't do hics on Tuesday because of a mid day doctors appointment then on Thursday I've gutta go to Braintree rehab and see Shannon t…

10.17.15 after 10.45am

I've gutta get to Wg's at some point today! I was there to get a med I had run out of, they said they had to call the doctor cause I guess the scrip had expired. That's the med that has been keeping my throat from catching on fire! Last night it started burning but I had some ice cream to sooth it! I've got my monthly peapod order coming Sunday btw 10am and 1pm so I shouldn't get much stuff but they have the coffee creamer that I like, I've tried to get it from S&S but it then comes in liquid form and I've found the powder form works so much better and tastier! I've still got a little under a grand in my checking account and I paid all my bills yesterday plus all the automatic withdrawals have been taken, electricity, apt insurance, life insurance so I've just gutta make sure rent is always there! That went down a few bucks too, from $635 to $628! This survivor knows how he must stay well within his means and does very well at doing just that :)…

10.15.15 after 11.30pm

I'm up late tonight cause I got in to fixing my desktop! I was getting blue screens on start ups, Webroot couldn't find any threats so it had to be a system malfunction! I ended up doing my first system restore! That seems to have done the trick. I did a disk clean up and an error check after it was completed! I'm doing this blog from my desktop :)!

10.15.15 after 10am

As if this survivor wasn't dealing with enough issues now (mainly health issues)! I've now got issues with "the ride" again! I was gonna do hics today but the driver came to pick me up and obviously couldn't find my building so never rang my door buzzer, my land line rang, I couldn't answer it before it went to vm so I immediately called "the ride" and stayed on hold for so long the driver no showed me! Lately they have had no problem finding my building so I didn't think it was necessary to have my cordless land line receiver by me around my pick up time, I guess now I'm gonna have to employ that strategy again! 

10.14.15 around 8.30pm

This survivor had a great time at casino night at hics! We started off with quarter antis! I started out slow then as the pots got larger I got hotter! The last hand of the night there was $8 in the pot! I walked away with that pot :)! I missed my busy lifestyle, hopefully the worst is over from the effects from my surgeries! I've gutta get a doctors note saying I can start working out at the YMCA again I can get that from dr.Tracy when I see him on the 20th of this month! I think I've got my alarm clock all fixed so no more over sleeping!

10.14.15 around 1.45pm

One of the most important things we were able to do today was, I've got an appointment to see dr.Tracy, the one who did my last surgery! Things just don't feel right to me after! I called and told them of this and they said those systems are normal! I've been through prostate cancer and nothing with that hurts as much as the after effects from having these stones removed! The feeling of always needing to empty my bladder sux big time too! When I was fighting prostate cancer I didn't get incontinence! Now I've got to be sure I know where the nearest rest room is! I've gutta explain these awful affects to the doctor! I see him on the 20th of this month!

10.14.15 after 1pm

KJ was over this morning and I think plans were made to go to Citizens bank! Then I took a ride to Wgs to get some stuff and to get meds. One of the med I was out of they say they need a new script for! They are gonna call my doctor and call me  when it's ready! Now I'm waiting for a 3.30 pm pick up to go to hics for casino night:)!

10.13.15 around 9.20pm

My desktop is still sick :(! I've connected my keyboard to my notebook so that makes a little more comfy using my notebook :)! The typos will be the same as before now :)! We all get typos though! KJ makes a home visit tomorrow and I think she's gonna take me to Citizens bank! I've got a nice chunk of change to invest :)! I'm gonna be very careful about how I do this. I'm planning ahead for things I'm gonna need to do with this! I'm thinking my full time job is not only working on me but also working on making the money I invest grow and grow more! I'm gonna start out with sure things like federal insured certificates of deposit! Then in time get in to a money market! I can research everything from my computer! I'm gonna have to see how time goes though cause tomorrow night I'm going to hics for casino night and I've got the YMCA and my check should clear by tomorrow! I need to fill a script and have very little food!

0.13.15 after 9am

It seems I've got some awful issues with my desktop! I'm using my bedroom notebook to do this blog so please excuse the many typos that most likely will occur! I'm living with a tbi and it hard enough just to get this notebook to my desk ! I overslept today so I couldn't get ready in time for my trip to hics :(!

10.12.15 after noon

I started my computer this morning and got blue screens! I then ran my Webfoot secure anywhere software, didn't find any threats, ran an error check, same thing! I then did a series of restarts and got it working! My trips to the YMCA today I must have "FED" up booking cause the trip to had a pick up time and not an arrival time which would have left me less then 40 mins to do my work out, to do my complete work out it takes me about an hour so it didn't make sense to try today      :(! The great thing going on in my new life now is that I received the check from my trust :)! My plan is to go to my bank and first talk to someone like an investment  councilor! Then put $10,000 away in a high yield cd then take $7,000 in a shorter term cd! I want to be able to help Lissy get hitched so I've got to be able to get at some! I think KJ will take me to Citizens bank Wednesday morning, I want to use Citizens cause I'll be able to track all my investments with my on l…

10.11.15 AROUND 4pm

This tbi survivor made efficient use of his time today! I did all of my laundry but while it was in the dryer, which takes an hour, I took a ride to the store! I got through the laundry with minimal struggles :)! I think that's cause I work every week to find strategies to make it go smoother for me :)! I'm always looking for ways of making this difficult life more bearable :)!   

10.11.15 around 8.30am

I'm up kind of early for a Sunday morning but that's cause I've got a lot of tasks I must accomplish today! I've already booked tomorrows trips that's only cause for the next day I've gutta do this before noon using their confusing web site! I've got time to do the rest it's just now there's no pressure, stress, angsioty to get it done, I can do it at my leisure. I've gutta do laundry today! I think I checked my laundry card yesterday and I had enough to wash and dry a load! I've gutta take a ride to the store. I'll do that when I switch the load to the dryer cause it takes an hour in the dryer and that's an effective use of my time! This tbi survivor has living totally independently down to a science :)!

10.10.15 around 2.20pm

The nurse from CCA has come and gone! I had forgotten I requested a nurse visit me when my care manager came by! I forget how often this will happen but I think it's a good thing! Now if I have anything that concerns me health wise I can explain it to a nurse! Today I showed her some discoloration on my right arm! She said what everybody has said about this. Did you bang it against something! It seems to be fading out now! At my age I think it's best to bring these kind of things to someone's attention ! After she had gone I took a ride to Wg's and got a few quick and easy dinnas and $20 cash back! I had to be very careful though cause I'm at the end of my pay period! Tuesday my check will be deposited in my account and it will clear by Wednesday!

10.9.15 around 4pm

I scooted to the leasing office to sign some agreements and drop off a voided check! My rent actually went down a few $! From $635 to $628 :)! The check is needed for an automatic withdrawal from my account! Joann called from dr.Tracy's office with a few dates to see the doctor. That's hard for me to try to process all the information and make a decision on the spot. I asked if there was any way I could get emailed the dates and times. I got the email,made a decision, responded, cc a copy to KJ so she knows to write it in my pocket calendar :)! This tbi survivor is well aware of all the tools, supports he's got, and how I must use them to live my very successful independent life :)! 

10.9.15 after 9am

This survivor made his decision on what's best for him today. I'm not gonna risk total embarrassment at the YMCA so I'm not gonna do the YMCA today! I'm just not ready to be in public for an extended period of time! It's not like I can take a urinal with me and use it if I must so I figured I'm better off staying home! I guess the good thing is that Maryann at dr. Tracys office said these kind of affects are normal after this type of procedure but that doesn't make them any easier to deal with! 

10.9.15 around 8am

This survivor's angsioty is getting to him big time this morning! I've got trips to the YMCA today but I don't know if I'm ready to chance going out! My strategies have worked out well at home but I don't know yet if I'm ready to go out in public! 


My strategy for dealing with the effects from my surgery is every hour try to empty  my bladder weather it feels like I need to or not! It worked so far today, no leakage :)! I did take a ride to the store today! I'm gonna attempt to go to the YMCA tomorrow!

10.8.15 after 8.10am

Today was our conference at Florian hall in Dorchester Ma. I just couldn't get myself to go and risk embracement cause of not being able to hold my bladder! Last night I went out to dinna and took my bike next door to Lucky Lou's and ambulated around without any assistive device and did very well! Maryann from Dr.Tracy's office called back yesterday and said these kind of symptoms are normal following this type of surgery but I forgot to ask how long I should expect them to last! Last night I barely made it home before I lost control! I was unlocking the door to my apartment when the river started to flow! I wasn't gonna risk that happening today at the conference! I guess if I'd put more thought in to it I could have brought an extra pair of pants but who wants to do that? I guess what I need to do now is to think of how I can prevent this from reoccurring again! It kind of makes me afraid to go anyplace far from home!   

10.7.15 after 12.15 pm

KJ and we attempted to make the calls I needed to make but had to leave vms! One was a call to the doctor who preformed the last surgery so I figured it would be best not going to the YMCA and WAIT for a call back! These after effects from the surgery are starting to really bother me! I'm still gonna meet hics at Lucky Lous though! I'm gonna ride my bike over and park it then ambulate around without any assisted device! 


I got up this morning with a real upset stomach! Needless to say I couldn't envision taking "the ride" and getting bounced around in the van! I've got to start eating a well balanced dinna! Before my tbi I always made a well balanced meal! That's cause I cooked for Kenny every night and my girls on Tuesday and Thursday and every other weekend! 

10.4.15 around 5.30pm

I've been very busy today! After I had my two large cups of coffee this morning I booked all my trips for the week! After I book them I go on the web site to see if they are all correct! That's a key thing I must do every week! I found one trip that wasn't correct and made correct :)! I did all my laundry after fixing my trips!I made myself some lunch today too :)!

10.4.15 around 9.30am

I got up this morning thinking of all I've been able to accomplish independently this summer! I've been able to maintain my busy lifestyle, have two surgeries, including getting transportation to and from SSH! That wasn't easy too cause I had got put out too! I've been able to make all my appointments with the help of "the ride"! Then too I had to maintain a balance in my account to be able to get to these places! I purchased my bike! That not only is more practical for getting around the community it's fun ridding! I've got closer to getting ALL my funds in my name, got even with the IRS! I'm living with a traumatic brain injury too!


I had one task I had to complete today! I scooted to the office to add value to my laundry card! I still need to give them a voided check so they can deduct my rent from my account every month! I'm gonna have to skip the YMCA Monday to take care of that!

10.2.15 after 7.30pm

I took a semi wet ride to Wg's today to pick up a med the called and said was ready! I was just about out of this med too! This med it's said not to miss a day of taking it too or bad sides could occur! I got some other stuff while I was there and I forgot some too!

10.1.15 around 12pm

I didn't do hics today cause I'm afraid to stray far from my bathroom! Plus I don't have a pair of jeans left my bladder didn't even leak a little on! I do have shorts and sweats and good pants but it's a little too cool for shorts and I'm gona need my sweats for tomorrow at the YMCA! I was thinking about doing laundry today but I think I need to put value on my laundry card! I've got a good enough cash flow to be able to but I don't receive my check until a week from Tuesday so I've gutta be cash careful! This survivor's brain is just filled with so much stuff right now.

9.30.15 after 10pm

Hics was pretty cool tonight! It was basically a bingo night! I got bingo two times and there were scratch tickets for prizes! Now I've got two more tickets to invite that sexy blond over to scratch! I got home tonight and another person who lives here said they took Lisa to the hospital! I called her as soon as I got in but had to leave a vm! She called back a little while ago and they had something  similar to a stroke but not quite as bad! She said this is the 2nd time this has happened! I've gutta get this chick exercising her brain. I stressed to her she's gutta find some time I can bring my netbook over and set her up with that! They also said it could be MS! I've just gutta find what resources I have I'm not using and then set this chick up exercising her brain the fun way :)!

9.30.15 around 10am

KJ has been over for our home visit and she AGAIN helped me accomplish tons :)! I'm not gonna do the YMCA today cause Ed promised he'd come over and give me a check for ALL that's left from my trust, priorities!

9.29.15 around 6pm

It's a good thing I hung on to my pain med! I'm finding it extremely painful to empty my bladder! Not that this med helps very well, I've  had four of them so far today! I didn't do hics today cause mainly my continence issues! I've been alright so far today it's just when I go to empty my bladder it's causing me quite a bit of pain like a sharp knife is leading the way.  

9.29.15 arond 9am

I got up this morning really feeling the affects from Friday's surgery! I'm even thinking about taking a pain med! I've got two scripts of perks, I was gonna just sell them to the pain that lives in this building but now if it helps I'll just get rid of one. I think perks used to be a popular street drug! I'm not in to this selling of meds but I'm really running low on funds this month! I couldn't do bowling today cause I'm worried about the affects happening at the bowling ally! I'm not gonna get embarrassed so I think it's best I skip it!   


I overslept this morning! The land line rang at about 9.45 am or I'd still be sleeping. My pick up to go to the YMCA was 10.35 am there was no way I was gonna be ready for that so I couldn't do the YMCA today :(! This survivor needs at least an hour before my pick up to get ready for whatever I'm going to do! I've gutta shower, have my coffee, think about what I'm gonna do, make sure I blew out all candles, check email, check fb, make sure I've got my keys, cell phone, and go through a mental checklist before I can feel good about leaving home! If I didn't do all those things I'd get real anxious I may have forgot something!

9.27.15 around 11.20pm

I did all my laundry today! I went down to the laundry room and first checked my laundry card to see if I had enough value to do it! I had to scoot to the office and fight with the card machine! It wouldn't take a $10 bill I had just for this! I had a $20 bill no way was I gonna feed that to the machine but I had two $5 bills as well! First one I tried the machine kept spitting back out! I tried ironing the bill by using the machine but I couldn't get good enough for this finicky machine! My last chance was the other $5 I had. It didn't want to eat this either so I ended up working as hard as I can to flatten this bill out! After about twenty mins of fighting this machine it finally eat my $5! I'm telling you nothing comes easy for this survivor but I never give up! I've got the YMCA for swimming laps then doing my weights and all I have to think about while I'm pushing all that weight is that God blessad laundry machine! 


It's a lazy Sunday! I still have yet to get my act in gear and shower! I'm still having my first large cup of coffee! Being Sunday I've gutta stick to routine which means, trim my beard before I hop in the shower, get all my laundry together, do laundry! I think I booked all my trips for the week over the past few nights. Pretty much a regular week, YMCA Monday for swimming and my weights, hics Tuesday but on Tuesday the hics bowling tournament is taking place, go team Jones! YMCA Wednesday then hics Wednesday night for game night. Thursday hics then Friday the YMCA just for my weights. This survivor keeps very busy that's the way I deal with this dreaded injury, if I'm busy no time to think about how much it sux living with a traumatic brain injury! I've just got to keep going foreword to be the best me I can!

9.26.15 around 11am

I had a very nice talk with the sexy lady who was on the back of my bike when WE were in OUR accident! It came close to giving me complete closesure from our relationship! We chatted on fb for a while then on the land line! She said she was sorry for all the hurt that was inflicted on me but I forgot to explain the biggest hurt I felt! I know gfs come and go but the thing that hurt the most was her saying to me the reason I blog or share my blog with fb is to make people feel sorry for me, ouch! She knows now I do that for a complete different reason now but I just still need to say that to her! Hopefully  she reads this and can understand how much that hurt and then I can have complete closure! 


Bits and pieces of the after surgery talk with dr. Tracy are coming back to me! I remember saying how it hurt to urinate that's when he said he put a stint in there. I should have asked "what's a stint"? Common sense tells me this is something that will prevent my kidney from getting a blockage again though! He said he took that one out and put in another so I've got the same issues as last surgery, pain when I urinate and incontency  but my strategy of having  a urinal by my bed still works well! 

9.25.15 nearing 9pm

The highlight of my day most definitely had to be my trip home from the SSH! I had the most stunning pretty sexy blond Brazilian chic for a driver! Her beauty was one thing but then when she talked the accent combined with her raw beauty just screams out sex appeal ;)! She was good at her job too but I had a lot of trouble seeing past this babes awesome looks :)! That's one thing the tbi couldn't change about me, my appreciation for a pretty lady :)!    

9.25.15 after 8.15pm

I had surgery today and it turned out to be quite an ordeal! First not getting calls the night before really had me confused but I spoke with KJ this morning and she knew all the details. The thing is though I was told by my care manager I would get calls the day before! The person supposed to come with me never showed before my ride came to take me to SSH! That kind of sux too cause dr.Tracy explained a few things to me and my brain couldn't process all the information well at all! That's why I needed someone to come cause I don't know if he got everything or not and if I need to have more or not! I've got more to add but right now this survivor is beat!

9.24.15 after 9pm

Still no call from the person supposed to accompany to my surgery or the transportation company I had my care manager set up! The first surgery I had no problems getting there that's cause I set everything up myself! This was supposed to be so easy getting help this time, NOT! I called and left my care manager a vm explaining what's not happening and sent KJ an email doing the same and made sure I had the phone number for the surgery in case I've gutta call and tell them my trips planed to go to ssh got all Fed up! I don't know what else I can do! Oh I did call KJ and left a vm giving her a heads up as to what's not happening! I guess all this survivor can do now is WAIT till tomorrow morning and call the person who makes my life somewhat manageable but defiantly better, KJ

9.24.15 after5.30pm

I got the call from SS hospital and it seemed like it was just a confirmation call! They were just making sure I'm coming! The thing now that is confusing to me is they said I don't have to be there till noon! I believe I told my care manager I had to be there at 11.30 am! The most important thing is I get home after the surgery though! 


I'm just testing to see if my blog is working properly!The last post didn't come out with large font and bold print but now it seems to have it :)!

9.24.15 around 2pm

No calls yet from anyone, not even the SSH! I'm now thinking they got all they need when I got the last call! I just wish they said so! Now I'm waiting for the call from the person accompanying me to my surgery! Transportation won't call until tonight!


This survivor just realized something as I was getting organized to go to hics! I'm not only supposed to get a call from the person coming to my surgery with me but around noon the south shore hospital is calling with a pre-surgery interview! This survivor may have things come back slowly to him but they're coming back :)!

9.23.15 around 6pm

This survivor is trying to process all the information he received today! KJ was over this morning and we called my care manager at commonwealth care! I got vm but she quickly returned my call. I said I was having surgery on Friday and I need transportation but on the return trip someone has to make sure I can get in my apartment or the won't discharge me! She said they will and I also got someone to accompany me to my surgery :)! I know I'm gonna get phone calls from the person who is coming with me and the company providing the transportation but I just can't seem to remember when! I know the transportation call will come the night before but I can't remember when I'm getting the call from the person going with me! I think it's the day before and that makes sense to me! I've already proved I can do it alone in the last surgery now this will make it so much less stressful! I'm trying to utilize all the benefits available to me!   

9.22.15 nearing 9pm

KJ is making a home visit tomorrow and we've gutta get my transportation done for my surery on Friday! I took the day off today so I could locate a file for commonwealth health care and found it :)! I know they're gonna want to know a return time so I had the hospital email me instructions for the preparation for the surgery and there is a telephone number to call! I'm gonna do this with KJ to try and prevent any errors!  

9.22.15 around 7pm

I didn't do hics today cause I had to search my computer for contact information to commonwealth care alliance! KJ has a number for them anyway but I found a different number with the name of my care manager with CCA! I'm hoping I can just call my care manager and she will handle it all with just one call to her. I can't take "the ride" home cause I'm getting put out and they've gutta make sure I get in my apartment safely.