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Showing posts from 2017

12.13.17 around 10.20am

KJ made a home vist this morning! I'm real greatful to have the support I recieve from this young lady! She takes all my dificult tasks and takes it upon herself to make sure they are completed! She makes sure I understand everything I must do myself! It keeps my stress and anxioty under controle :)! Now I gutta take a cold scoot to Wg's to get a script filled.

12.12.17around 7.55 pm

After being f ed by "the ride" I knew I needed to go to Wg's for a med! I scooted to Wg's and asked if any meds were ready for me. They looked but they had nothing. I forgot I had a script on me I need them to fill! I'm not sure if I'll have time to scoot there tomorrow. I've got KJ coming after 8.30am, then I'm going to hics for casino night! I think I'm gonn try though!

12.12.17 around 10.15am

I was gonna do hics today until I got Fed by "the ride"! I had an 8.47 pick up time to go there and it got to be near 9am so I called and said wtf! They said "we havn't found a driver for you yet"! I book my trips a week in advance there is no excuse for the stupidity this firm seems to operate under! I have never seen a firm as badly managed as this! They treate the help bad and are rude over the radio to them! I understand there is a high turnover rate there but if they were treated with respect they would keep more people! In my years of managing different glass co's I always treated all the help with respect! I believe if you treat people with respect they will do all they can to get the job done! I am frustraited!

12.11.17 around 10.30am

Today is laundry day ugg! I've just gutta set my mind straight and think of all who didn't think this survivor could be successful leading an independent life, makes me wanna say in your face :)! Laundry was one of the things my abuser had no faith I could make it as far as I've come. Maybe that's why he's so jealous of my abilities. He dosen't pocess the ability to never give up!

12.10.17 around 9 pm

I had issues finding the link to post a blog!I finaly did but I got here in a round about way! The Pats are on Monday night football! I scooted to the store today and not much of anything else! I did make some dinna but I forget what it was. Oh it just popped in my head, I had a couple of chicken and cheese wraps from Wg's!They're small but very tasty ;)!Tomorrow is laundry day ugg! This is always a struggle for me but this surivor CAN do it all by myself :)!

12.10.17 10-11am

Happy Sunday! Everyday is a happy day for me cause I chose to be a happy guy :)! It sux living with a brain injury but you can't dwell on how much it sux you have to take joy and be proud of what you've been able to accomplish against all odds! Today is my day off but there is no day off for me cause even simple tasks are big projects for me! Today I'm thinking of taking a scoot to D&D's then watch the Pats on my 52inch flat panel tv. Have a happy Sunday.

12.9.17 after 6.40pm

I got homemaker service today:)! Carmen was here,she did my dishes,mopped my vinal floors, wipped my kitchen counters, made my bed with clean sheets,vacuumed all my carpets! I booked all my trips for next week too! Tuesday my check is due then clears by Wednesday. That is good cause my ride account is getting low! I usualy add $100 when I get my check,sometimes  little less but it all depends on what I've got for a balance left! 

12.9.17 after midnight

I'm still up cause I found a way I can rent movies on my computer!In rememberence of Kirk Douglas I rented the 1st movie I saw him in!"In Harms Way"!This is one of my all time favorites!A 1960's movie with John Wayne and Patrica Neal! Classic navel battle! That's pretty kewl just to type in what movie I wanna watch, then get options rent or buy,then for a few bucks rent any flick I wanna see :)!

12.8.17 around 8pm

My homemaker is gonna come tomorrow at 12.30pm! I've gutta remember to ask where my other set of sheets are at! She changed my sheets the last time she was ova and my sheets wen't in the laundry and I can't find them anywhere. 

12.8.17 around 5pm

I'mI guess I've been lax on blogging! So lets see if I can find in my brain whats been going on with me. Wednesday KJ made a home visit then I went to Tennisee's real barbaque in Braintre Ma with rec,hics for dinna and planing for January of 2018,wow! My impression of Tbq was not scooter friendly! The food was outstanding but I had my issues tring to manover my scooter around  in there! Thursday I was gonna meet hics at the south shore mall but I woke up that day so confused I wasn't doing well at all! I had one of those days .I was like scatter minded, I'd forget what I was doing,gonna do,why,all these things! That doesn't happen often but when it does I've gutta do a shutdown, then reboot my brain! I heard were in for some snow!Wg's had called and said a med was ready so I needed to scoot there today! There were 3 meds ready! Those and one more is all I'm taking now! I was gonna get homemaker service today but they called to say she got a flat and…

12.6.17

KJ makes a home visit in  little bit then I'm going to Tennasees real barbeque in Braintree Ma. for rec- dinna and planing for January 2018, wow!

12.5.17 after 3.30pm

I didn't do hics today cause I wasn't feeling 100%! Today was a shopping trip to the Christmas tree shop! I used to like getting inexpensive candles there but last year all they had was expensive Yankee candles! I scooted to the store today instead! Time now to start thinking about dinna :)!

12.4.17 after8.10pm

Today was laundry day! It had some axious moments. I started and my landry and said $7.5 something so I had to add value to it so I added value to it first, then started to do all my laundry!Got that task done then made some dinna!1st thing I had to do today was to add value to my ride account! Then did the rest of my trips for the week! I'm real tired now so I'm calling this weekend ova:)!                                                                                                

12.1.17 around 7.20pm

Wow December already! Today I kinda "fed" up. My homemaker was gonna come around 2pm! I needed an item at the store,now it's around 1pm plenty of time to go and get back b4 two. I started out on my journy and forgot to make sure I had all I needed. I forgot my fanny pack! I go back and get it, now it's 1.30 pm so I called bayada and cancel my homemaker and started out again but now I wouldn't get back by two! I called bayada and canceled my homemaker cause I wasn't sure I'd make it back in time! I get to the store go to get my card and it's not there! My anxioty is going crazy at this point! I get home and my card is right were I left it on my desk! Just an example of why I really need to think b4 I leave and dig deeper in my thoughts to have all that I'm gonna need!

11.30.17 around 8.20pm

I've been busy with doctor appts. this week! Tuesday I went to the  doc. who does my clonascapys. I had to do a stool sample for this visit! I was given a kit to do it at home! It had a cover to go over the toilet seat cause it couldn't touch the toilet water! When I went to do this I couldn't find the cover, I had to think of a way to collect it now! All I needed to do was stab the stool with a long thin plastic needle and put it back in the like little plastic jar! I just did my duty then wiped and collected it off  the tp! I blood was found in the sample I'd have to have another colonoscapy! I was able to read the results on my health.com and thankfully it was negative!So no colonoscapy :)! Wednesday night it was hics for bingo night! I won a game and recieved a prize of a scratch ticket! I'm not into scratching these so I'm gonna get my friend to do it! My thing is I'll split any winnings with the scatchee!Today I went to Braintree rehab to get my pump …

11.26.17 around 8.15pm

I've had a great Sunday! It started with a call from Wg's, that woke me, saying a med was ready, I scooted to Wg's with my beutiful blond friend then we went to D&D's for lunch and to spend time together :)! Then got home in time to watch the Pats win :) Tomorrow is laudry day ugg!Just made myself some dinna! I've gotten used to making an after dinna cup of coffee! This is where the feeling of being FREE is most prevolent! It's only instant coffee but living in Scituate I was told I couldn't, I made too much of a mess! I'm thinking it was someone being abusive again! You've seen it, that's why it made me feel imprisoned! I'm doing so way better now :)!

11.25.17 around 8.45pm

I got my peopod order this morning and now I've got yummy things to eat and drink :)! Today I scooted to the store with my blond friend walking along side :)! We made some plans for tomorrow too, we're gonna go to D&D's for lunch and just to enjoy each others componey :)!

11.25.17 after 10.45am

My peopod order just arrived! I got all the frozen stuffs away but I still have the other stuffs to find homes for! These are things that get me neuro exhasted! Then while doing this task, my cell and landline start ringing! That alternates my concentraition! So I'll have to sit and take a short rest!

11.24.17 around 8pm

I've completely forgot what went down today :(! My brain is like the Bermuda triangle. Information goes in then never to be found again! I think I do pretty well for a survivor of a severe traumatic brain injury. Tomorrow I've got my peapod order coming btw 9-11 am then my homemaker is gonna be here at ?!I'll have to call and have them tell me again! Its just I have so many thoughts going through my brain it's overwhelming at times!

11.23.17 after 7.30pm

I've got a peopod order coming Saturday btw 9-11am!I keep thinking it's Friday! I just look at my confermation email and I'm remineded of the correct day and time! This and similar things is why this survivor uses and depends on email!

11.23.17 around 11.30am

Another holiday this survivor has nothing going on:(! I do know of a free Tging dinna at a church close by but just thinking about it gets my anxioty cooking! I do need to go to the store,maybe Wg's. I do hope everyone has a great day though,I'll get by, I'm a survivor!

11.21.17 after 8.20pm

I've been to hics today! The thing I remember the most is I needed to cash a check,my bank isen't far from hics. KJ walked with me to Cb!Also there is a D&D's. I went to D&D's after I cashed the check, made my own way back! Not a big deal but the last time I went to D&D's I had issues finding my way back to hics! I have to give myself cudoos for this! My brain injury seems to effect me so I've got issues remembering directions! I just remembered landmarks and that worked great! Tomorrow KJ makes a homevist after 8.30am then I'm gonna go to hics for bingo night :)!

11.20.17 after820pm

I didn't do laundry today! I'm gonna try to skip this week and streatch the value on my laundery card! If I start running out of clean stuff I can always do it then! I did scoot to the store and met up with the pretty young lady who used to live just accross the hall! We chatted a little and she invited me over her townhouse apt. here at Ranblehood :)! I also ran into Noel who used to be the execu. asst. at hics :)! Now it got to be around 6.30pm so I thought I would check my trips for tomorrow! I pull up the web site and see no trips scheadualed for tomorrow! My angsioty starts running out of controle! Then I find a memory in my brain this happend b-4 around this time! I believe around this time the computer must be busy sortting through all the trips around 7.30 I check again and they apperred on the website! Tomorrow I've got hics :)!I've gutta see if I can make my way over to Citizens bank!I've got a $25 check to cash for some work I did on a study! It's on…

11.19.17 after 10.30pm

I'm up a little late tonight cause I got into watching some of my dvd series of JAG! That was my favorite tv show! I got all ten seasons in a dvd set :)! Tomorrow I've gutta do landry, I checked my card and had plenty of value left to do a wash and dry,ugg!

11.19.17 around 7pm

Today I had to book all my trips for the week. I was getting in the habbit of doing it on Saturday night but I don't know why I didn't this week. It's done though :)! I've just been laxing otherwise :)! It's my day off! I do have to check the value on my laundry card yet to do but I'm in no hurry to do that! I should make dinna now, I'll lesurely slide into doing that though! Watching the Pats beat up the Raiders :)!

11.18.17 around 5.30pm

I dissmissed that jerk giving a hard time or abusing me! I refuse to let his nonsence take up space in my brain! I've got way better thoughts to use it for :)!  I never did a Wg's scoot today, tomorrows another day :)! 

11.18.17 after noon

I think Carmen (my homemaker) told me yesterday she would come today btw 11-12 but I may not have processed the information correctly, I'm always doubting myself whan it comes to proceesing information :(.

part of the conflict

keeping everyone afloat I ended up with over $100,000 in debt yeah that supporting other people Yeah Jamie think when were you would be if I had not agreed to let you into this house you would’ve been in a nursing home and you would still be there!!!! Once they get the money they would never let you leave no matter what your progress I helped you through a divorce what did you do with it you want to use the money to buy a fucking motorcycle which fuck you up My money Jamie mother gave it to you do you think it was hers do you think she made that kind of money where do you think it came from Wrong mine and Jamie very wrong morning yur not making any sence, yur just not being realistic

11.16.17 around 8pm

I've been to hics today and we had a Thanksgiving feast today :)! It was great, turkey and all the fixings! Their is always a staff member who creates a slide show of the past years events! They seem to get better every year! The staff at hics is outstanding, they try to understand what we go through doing everything! I guess what I'm saying is I'm very thankful for the great support I get from this wonderful program and feel very lucky to have the bestest casemanager I've ever had, KJ is wonderful!

11.15.17 around 11am

KJ was over and it was very good! I was 100% on my meds except I took Thursdays morning meds this morning, easy fix! I shared my conflict I had with a family member, that's whats great about fb chat, it's saved automaticaly! She couldn't believe how mean someone could be! She apologized for me having to go through such abuse! It's not her that needs to give me an apology though! I don't think he understands how wrong it was though! He sees things his way,he's never wrong in his eyes. It's always good to get a 2nd opinion!

11.14.17 around 8pm

I've been watching live chats by other brain injury survivors!It's very enlightening! They discuss things that are giving them issues and everyone says the thing that helps in dealing with a brain injury is to spend your time with other tbi survivors!

11.14.17 after 5.10pm

I've been to hics today :)! We had a regular day with brain stimulating life skills groups! I'm still processing my confict I had on Sunday! I'm thinking about sharing the text with KJ tomorrow! I gutta make sure before I react I truely understand it was way wroung to say that crap to me!

11.13.17 around 2.45pm

I've been to my podiatrist and he shaved off my corn and a calus that seems to be reapearning now! He found a couple warts too! He froze them! He also cuts all my toe nails on both feet! That is a very difficult task for this survivor to do himself! Me being me I asked, how do warts appear? He said "they come from viruses"! I'm thinking of un-friending a family member on fb! This person said I never call or ask how he is. I msg him on fb and asked how he was. Then he responded with nothing but negative talk! Putting me down and insults! I shouldn't have to take that crap! So that's one way I can rid myself from his crap!

11.12.17 around 1pm

I slept in this morning, guess my brain needed to be off for a while! Then this morning I get in to conflict! Why does everyone have to blame others for their mistakes? I accept full responsibility for mine! If you choose to do something, anything at all, you shouldn't blame it cause I had to cause of you! I booked all my trips for the week last night so one task is done :)! I spoke with a friend last night and we may do D&D's today,I'm always up for D&D's! My laundrys all done so that's another task done:)! Now I'm just enjoying Sunday coffee!

11.11.17 around 7pm

Carmen (my homemaker) was over only to wash my bed linnins! I do have another set of linnins but they don't fit as well as these do! She did all the laundry I had too :)! I'm not saving anything though cause she uses four machines at $2 a piece! I've still gutta put it all away though! That's still very challenging for me to do but they're all folded on my bed so I don't have to straiten them all out after going through the dryer :)!

11.11.17 around 8.30am

Today I'm told Carmen ,my homemaker,is gonna be here at 10am! I still have yet to figure out how I can post my ct scan from the cd I recived yesterday! I tryed downloading to my hard drive but it kept saying "bad file name"! This is how the computer works my brain! It optimizes my problem solving skills!

11.10.17 around 9.10pm

I got my head examined today! Ct scan of my brain!I asked if I could have a copy of it too! They gave me a cd with it on there I'd share but I'm having issues sharing from the cd. Already got a call saying it looks okay! LB wants to ask dr.K for my previous ct's and compare them! I think that's fasinating!I'd love to have all my ct scans and do my own comparison!

11.9.17 around 8.30pm

I was reading posts in one of my fb tbi support groups tonight and had to coment when a survivor was differing themself from a noninjured person!They called a noninjerd person a normal! We are normal too! We live with a brain injury but we're not abnormal! I call everyone who's not living with a tbi a non-injured person! I'm a normal guy who lives with a brain injury! Tomorrow I'm going to  clinic in Weymouth to get a cat-scan of my brain! This is cause of the falls I've had recently!

11.9.17 after 6.45pm

I did hics today :)! We had our life skills groups, they were all great :)! I do peer tbi both Tuesday and  Thursday now :)! I was able to have the driver on my return trip drop me off at Wg's so I could fill a couple scrips and get a few things! This survivor does such a great job managing my meds :)!

11.6.17 after 7.45

Today I struggled through getting all my laundry done! As I struggle through this task I just think about someone who had no faith I could do this,and all I need to be able to do leading a total independent life! He would always say "what are you going to do when you have to do laundry"? I would reply, "just do it"! So I JUST did laundry today, made some dinna. Tomorrow I'm doing hics :)! Wednesday is karacocike night at hics, then on Thursday hics again :)!

11.5.17 around 5.15pm

I'm trying to process the information I received this morning about "Jamies" burning down in Scituate Ma! It wasn't quiet  the same after Jamie (the owner) passed a few years ago! He was a good friend! I started to frequent there when I got separated and had to move back to Scituate for a few weeks! Jamie helped me in dealing with my new loss! Then I had to live in Scituate again when I woke up from the coma! Then we used to do dinna there 1-3 times weekly! I guess I lost a bit of my past :(!

11.4.17 around 6.20pm

It's very frustraiting living with this God blessad tbi! I thought my friend was gonna call me about going with me to the post office. I guess I didn't understand the information correctly or forgot how we left it!  There are only five roads to travl on to get there! I set out on my journy there and only had to ask for directions 1nce! Then forgot and asked a 2nd time! Found it :),then had to try to remember how to get home! I asked someone how I could get to Wg's from where I was at. Nothing was looking familiar to me so I asked someone again. I was heading in the right direction,stopped at Wg's picked up some stuffs then the store and made it back home :)! This forgetting things imeadiatly is so challenging but I'm making it :)!

11.4.17 around 9am

I survived turning 59yrs OLD :)! The bd wishes I got on fb helped emencely! It's hard to fathem I'm gonna be sixty in a year! Today I plan to go to the post office in Holbrook to pick up a package they say there was no secure place to leave downstairs! A friend is gonna acompony me which is great cause this will be the 1st time I've ever attempted to scoot there! It's only a little way from Wg's but I get severly anxious never done this b4!

11.3.17 around 2.50pm

I seem to have grown a nasty boil on my right butt check :(! It makes me comfortable sitting and even wearing pants :(! That's a physical pain though! It's not nearly as bad as the neuro pain I live with 24-7 :(!

10.28.17 around 8.30pm

Today I scooted to Wg's with my pretty blond friend :)! I picked up a med that was ready and got some other stuffs I needed! Then we stopped at D&D's,I ended up taking myself out to dinna there :)!  I did all my trips for next week too! Now I won't be straped down having to complete this task tomorrow!

10.24.17 around 9.45am

I'm pissed! My buzzer buzzed this morning, I assumed it was "the ride" I replied to the buzz saying "I'll be right down"! Go out in to the hall, call the elevator up, no responce! Needless to say I missed my ride! I got back in my apartment and 1st called hics then maintenance to fix it! Maintenace just called and said they're gonna have to call the elevator co.:(

10.23.17 around 9pm

Today I strugged through getting all my laundry done! I can get it to the laundry room without issues its just after it's been through the dryer and having to strainten everything out the hang it in the closet, I get confused at getting it all the way it's supposed to be:(.
Tomorrow I'm doing hics :)!

10.22.17 around 1pm

It seems I do have some fradulent claims against my account! I called the bank about this and didn't want to cancel the card yet! I donno how this keeps happening :(! Today I gutta get to Wg's and pick up some stuffs.

10.20.17 after 4.20pm

I dislike when I get my brain set for things to happen then things happen and they don't go as planed! The nurse who was supposed to come called and said she can't make it,asked if  Monday would be okay! The good thing is I got homemaker service today :)! Carmen who used to be my homemaker came over and did her usual great job on my place :)! My place is never real bad but it hasent been vacummed  for three weeks! It's just hard for me to do cause of my balance issues!

10.20.17 after 1pm

I'm still trying to get my anxioty under controle. I was monitering my bank accounts and there was a charge I didn't make was large too! I then had to transfer $ from my savings!I logged out then after a while logged back in! There then was a credit for that charge,geesh.

10.20.17around 10am

Things happen so fast it's hard to keep from getting overwhelmed! I was planning to watch the sun setting tomorrow night with a friend at Nantasket beach via "the ride" and as I was booking the trip my phone rings. A nurce is coming over today btw 2-4 pm,I think.

10.19.17 around 9pm

I went to Braintree rehab and got my Botox injections today! Lots of shots, they don't hurt except when I get them between my fingers! Dr. K does that area to try to help my hand and finger tone! It will take a few months to feel the affect of todays work!

10.16.17 after 7.10pm

I don't know how to react to being told a nurse is gonna visit Monday then dosn't,no call,nothing! It's really no big deal but I'm living with a severe brain injury and I try to be ready for every situation I'm part of! I've gutta gather all my thoughts and focus on each individual situation! That tends to get me very neuro fatigued!

10.16.17 around 9am

I thought I was gonna be without power today cause they were gonna be working on the system but not yet! I never got a call from a nurse last night so I've gutta think she's not showing. I tend to get overwhelmed when things don't go as I thought!

10.15.17

I was told Monday by the nurse who came over that she would be back on Monday.I asked will I get a call Sunday night confirming this?She said I would! No call nothing tonight, puts me in limbo so I'm just gonna go about living as normal! Tomorrow is laundry day but I hear the electricity is gonna be shut off for 8hrs!

10.14.17 around 9pm

Guess I haven't blogged for a bit,mainly cause I've been a little busy and frustraited! I got emencely frustraited yesterday cause nurse was coming to visit! Monday I got a call Sunday night confirming the visit and she came at 7.30am! No call this time and she didn't show till well after 10am! My anxioty get bad when I don't know exactly the way things are gonna go! I was supposed to have a homemaker come at 12.30 pm! Now I'm anxious the nurse won't be done in time! She checked all my vitals and they were all fantastic.Then my breathing and that sounded great! I'm waiting for a homemaker and it gets to be around 1.30 pm! My anxioty is real high at this point so I call the agency and say wtf! It seems she got hung up at the job b4 me and can't make it to me!I then worked on paying all my bills that went great! The ones I've got issues making the web sites work for me I did with limited issues! Then I did a peapod order. I didn't do one last mont…

10.11.17 after 1.30pm

A nurse came by this morning and she checked my vitals which of course were great! Then looked at my rug burns said they look good. Then wanted to see my corn and check my feet. I took off my sneaks and socks she said they look fine then I struggled to put my socks on quick cause KJ was now due and she dosn't like feet! I got done in the nick of time! Now I'm waiting for my 3pm pickup time to go to hicks!

10.10.17 around 9pm

I've been to hics today and that was brain stimulating! I got a text earlier from the person who runs the studies at Spaulding rehab in Boston Ma. I had a difficult time processing the infomation in the text so I asked KJ if she could help! We never got to it though! I get home to my cell phone ringing! It was that person! I started a study while I was an in pationt there so this was part of it. She asked things about how I'm living now, things I need help with and how I feel about it! She also asked about my state of mind! If I was happy with the way my life is going now! I had to compare how it was before my tbi to present day! Really there is no comparison! I got my tbi on 4/14/02, in 01 I had my best year finachialy, I made a little over $150,000 so I was living the high life :)!The good thing about the call is I get paid $60 for ten minites on the phone :)! Yesterday someone came over to talk about starting therapy again. We talked for a bit and mutually came to the concl…

10.8.17 4.40pm

I know this is football Sunday but after franticly serching for the Pats game I googled New England Patriots and was reminded they played Thursday night! I'm telling you living with a brain injury sux! I'm thankful of all the tools I have to make it bareable though!

10.8.17 after 11am

Sunday my day of rest! When your living with a traumatic brain injury there really in no day of rest though! I've got to focus hard on everything I'm doing to have a chance of being successful at anything I do! Simple things are big projects now! I've accepted that so I can now live a happy life, happy but very hard!

10.5.17 after 9.10pm

The speakers today at our conference were living with a brain injury too! They were all very successful living with their tbi, one emphasized education about brain injury! I couldn't agree more. I remember 1st getting on the internet after my brain injury the first thing I did was do a search on traumatic brain injury!  I gutta live with a severe brain injury for the rest of my life, I've gutta learn all I can about living with tbi!

10.3.17 around 8.30pm

I've been to hics today :)! It's always a great day when I have hics cause the staff is always very positive and that's the kind of people I like being around! This was the 1st time using my new scooter to do hics! It performed very well :)! Tomorrow KJ makes a home visit in the morning then I'm gonna go to "Dave&Busters for rec, dinna and planning for November! I think I'm gonna do some air hockey while I'm there :)!

10.2.17 close to noon

Something unusual happened this morning! "The ride" called and asked if I still needed a trip to my appt. Makes me think they will screw up going to see the nurse practitioner at my pcp's office! I've got a 2.39 pick up then a 5.15 return pick up! I get real anxious when I use this then when something unusual happens I get super anxious!  

9.30.17 near 9pm

Today I got my trips for next week all scheduled, made some dinna, did a trash run. That is so much easier now that I've got a working scooter! Parts of this task is still chalenging for me though like tying off the handle tye bag. My hands don't work together well so tying a knot gives me a hard time but I'm always successful:)! Tomorrow I'm gonna have to do laundry cause Monday I've got an appt. to see a nurse at my pcp's office! I gutta try to not get so anxious about things that's why I plan on doing laundry tomorrow! I gutta squeeze in a Wg's scoot too!  

9.30.17 after noon

I guess I'm more banged up than I thought! I got up today with pain in my ribs worse than yesterday! I get sharp pains when I cough! I've gutta beat this pain though! I just gutta think I've been through much worse than this! I can overcome! Wg's called and said a script was ready but the weather doesn't seem conducive for a scoot to Wg's today! I've got an appt. to see the nurse practitioner at my pcp's office Monday, thanks to KJ! Monday is my laundry day though, I think I'm gonna have to do it tomorrow! That means I gutta do laundry and find a way to scoot to Wg's! I'll do it, I can do any and everything I need to :)! I've got my new scooter so I can do a Wg's scoot and this scooter seems real strong! Today I should book all my trips for next week!  

9.29.17 after 1.15pm

My new scooter arrived this morning and did very well on it's maiden voyage! I only scooted to the store but I went up the hill on technical park dr and had full power when I got home :)! It seemed to move better too, absorbing the bumps and potholes better than my last! I believe all the parts are interchangeable too! Now I gutta stow away my old scooter in a closet out of the way! I thought I paid for a technician to come with it but only the driver came and he knew squat about this and couldn't help me with the batteries on my bike :(! I'll try again myself to make the right connections but not till much lata!  

9.28.17 after 9.30am

I fell Wednesday morning. I didn't get hurt too bad just a lot of rug burn and aggravated my busted ribs a bit! I went to hics last night too! I should have rested up but went to the store near hics using my walker and got real fatigued just walking about 50yds! KJ was making a home visit yesterday too and I could hear the door buzzer going off but couldn't get up to let her in! The typical "I've fallen and can't get up ". Me being me wasn't wearing my lifeline but after a lot of struggling was able to get myself up! I was butt naked after getting out of the shower too so I quickly put on pants just in time cause KJ called the police or 911 to make a wellness call! I was gonna do hics today and then go to my muscle tone doctor but I just couldn't deal with the pain of my clothes rubbing against my rug burn :(! This is where my scooter would be a big help! The good thing is I got home last night to a voice mail saying my new scooter will be arriving on…

9.25.17 around 9pm

My scooter having broke down really makes it harder to complete all the tasks I need to :(! I did a trash run today using my walker! That exhausted me big time! I had to think of my walking, balance, making sure the trash didn't spill! Then I had to get laundry done! I used to put the laundry in my scooter to get it down to the laundry room. Today I had to put my bulkie hamper on my walker then very gingerly get it to the laundry room not dropping it all! Well this survivor was successful on all counts :)! Now I gutta make something to eat! 

9.24.17 after 11pm

I finally got my Bose wireless speaker to play my tunes on Itunes:)! I had to get an app, bose app! Then pair it with my Iphone! This is the best wireless speaker I've got! I've got a speaker with a subwoofer in it and not even close to the sound quality  I'm getting out of the Bose :)!

9.24.17 around 3pm

I remembered the one task I needed to get done today, call "the ride" and book Thursday's trips! I go to hics then Braintree rehab for my shots of Botox! I tried doing it online but "the ride's" web site wouldn't cooperate with me!

9.23.17 around 7.30pm

I've been able to accomplish all the tasks I needed to today plus some! I've been able to scoot to the store. My new scooter can't come quick enough though! I can't keep pushing this one but the times it works is a big help to me! I've pushed it 1/2 way to the store then all the way home b4 but I need reliable transportation! Thats why I broke down and purchased a new scooter! The exact same as the one I've got now so the parts are interchangeable :)! Now time to make a late dinna :)!

9.23.17 near 5pm

I've been to Wg's via "the ride"! I think this scooter has had it! I made it to the store earlier but I had to do a lot of pushing to get it on the van! The return trip driver said he should have refused to pick me up! I can understand it must look dangerous a disabled man getting off his scooter and pushing the thing. Thing is I know my limits and stay within them! 

9.23.17 around 12.20pm

I've just taken a scoot to the store limping my scooter along but made it! Now I've got "the ride" coming to take me to Wg's cause I'm anxious bout my scooter!I've always been able to get it to go but when it stops my anxioty hits new levels!I think I'll try scooting home from Wg's anyway though!

9.22.17 8pm

My keyboard was "fing up" on me, used to happen  more frequently in Scituate this is the 1st time at my castle :)! I saved a lot of them seeing if idle time would rejuvenate them! I found one that works after trying a few! Tomorrow I've got a trip booked to Wg's but I'll see how my scooter performs then maybe I'll scoot home! I bought  a new scooter yesterday and got the white glove delivery! I took my scooter to hics yesterday  and it kept on stopping! KJ researched it and found my best deal! After I got done with the order it still cost me ova a grand! Mainly cause I got white glove delivery! That means someone from Pride mobility delivers it, puts it together, makes sure I can operate it then takes all the trash away! I learned this is the way to go after my bike got delivered! Maybe I can get the technician to connect the bateries  on my bike too :)!  

9.17.17 around 8pm

My scooter seems to have bitten the dust :(! I had to carry the trash out using my walker! It was only tiring but successful! Tomorrow I've got an appt. with my pcp. After that I've got no clue as to what I'm doing cause my pocket calendar is blank cause KJ was out the day of our home visit, feel beta KJ. I sent emails to try to find out guess I'm gonna have to landline the office tomorrow too. I gutta landline the MBTA too! I've only got enough left in my ride account for one round trip. I paid all my bills but forgot to add value to my ride account! I researched new scooters too! I've still gutta take the cover off the transaxle to see if visibly I can see anything wrong cause one like this costs about a grand now!  

9.16.17 around 11.40am

I've been kinda lax on blogging lately that's cause I've been busy :)! I wish I could find a place local that has karaoke! I like feeling like a rock star! I love all the comments I receive when I share them with fb. Today I should scoot to Wg's but I'm concerned bout my scooter! Last time it didn't perform well at all, I had to push it a way then a neighbor stopped,got a car, drove my scooter and I home! I could do a peapod order too! I didn't do one last month so I'm due ! Also I could work on getting my bike operational! I've just gutta finish the battery instal! Today I think I'm gonna work on my forms of transportation!    

9.4.17 after noon

Misplaced  aggression,it makes you put walls up to prevent that from ever happening again. I was chatting with a fb friend that got in money diffs cause of bad choices . He wasn't clear in exactly how bad it was but he started attacking the way I lead my life before my tbi and now. Maybe it's jealousy or envy. I'm living with tbi and control my   funds very well on a fixed income. I'm leaning toward envy. 

8.16.17 around 9pm

I've had a great day!KJ made a home visit this morning and helped me to pay off my amazone chase visa card! Then tonight I met hics at Castle island in S.Boston Ma. I got a chance to try my new cam in my new Iphone! I can't take the credit for the pics though. KJ saw me having issues getting my hands working together and offered to take some pics for me :)!

8.12.17 after 9pm

I scooted to Wg's today and forgot coffee,coffee creamer and dinna stuffs! I'm gonna try not doing a peapod order this month! I've got the means to but I've gutta use up the things I have! Needless to say I've gutta go back tomorrow! I've also gutta do that urine collection tomorrow!

8.11.17 after 6.50pm

My new Iphone came this afternoon :)! So I've been checkin it out and loading all my stuff from my old Iphone! It's really kinda simple cause I just connect it to my desktop and everything gets transferred from the last backup! Now I gutta do dinna :)! 

8.8.17 around 9.50am

I just got a landline from "the ride" asking if I can get there myself! I knew I'd have trouble this morning cause all last night the web site listed me as waitlist! That means I'm put on willcall the day of my trip! My luck with this is not food :(! good typo

8.5.17 around 11am

I'm sleeping very well I believe my ribs are all healed up :)! Tomorrow is gonna be a day I've gutta stay home to do a 24 hr urine collection for the kidney doc. It's kinda complicated with all the steps it requires to do it properly, KJ helped me to understand  what I've gutta do and when but I'm still very anxious about it! Two things I'm prone to forget are, shake the jug up before pouring in the tube I send off and write start and stop times! There is more I've gutta remember too like putting the preservative in before and the thing it came in, record the amount for 24hrs. I'm telling you leading my life is a full time job to do it successfully :)!

8.1.17 around 9pm

I did hics today :)! Tomorrow KJ makes a home visit after 8.30am then I'm gonna meet hics at the Clambox in Quincy for dinna and planning! I'm hoping a good band is playing across the street for the Wollaston concert series! 

7.31.17 around 8.30 pm

I did laundry today! As I struggle getting it all away after its been through the dryer I'm reminded of all who had no faith that this survivor could be successful living a total independent life! I've gutta say I do much better than some non-injured ones! 

7.27.17 nearing 9pm

I went to Braintree rehab to get my pump filled with the med, from there I went to Beth Israel deaconess for a doctors visit and they had no record of a visit in my name! The man at the front desk did his best to try and help me but he couldn't find anything in the computer! So I had to wait over an hour for my return trip home! I made it though :)! 

7.25.17

I'm doing hics today :)! Right now they are saying the weekend will be rainy but it's only Tuesday, a lot can change before the weekend! I've got a great start on getting color this year, a friend and I were talking about doing nantasket beach via "the ride this weekend :)! It seems when I go to the beach I get darker quicker :) 

7.21.17 getting near 8pm

It's hot on this 3rd floor apt! I think I gutta turn the ac on :(! Tomorrow a hot blond friend and I are gonna do lunch at the Clam shack in Quincy Ma. Maybe this time I'll see some Harley brothers I used to know!;)

7.20.17 after 7.30pm

Today I had a lot going on! Yesterday though KJ made a home visit along with SC the newest staff member. It seems this survivor is the model client at hics:)! Today was hics then had my driver drop me at Wg's, then my homemaker was over! Now I gutta do another late dinna! 

7.19.17

I stubbed my toe with the corn on it earlier today and it was giving me quite a bit of pain! That sux, I was going bowling tonight but I'm having difficulty even ambulating around this apartment! I had to cancel going bowling and ice my toe :(!

7.18.17 around 8.10pm

I had hics today! I had penmanship group where we practice writing! I'm not the only one who's brain injury took away the ability to write legibly! There are many of us who struggle with this :(! The good thing at least once a week I work on my writing skills :)! We had vocation  group where we discuss getting a job! I'm still WAITING for mrc to get in touch with me! I don't need to work, I do very well on SSDI it would just give me something productive to do, little extra cash wouldn't hurt too! Finished the day off with team building with KJ!  She always gets us working our brains! I'm just about ready to go back to the YMCA! Tomorrow KJ makes a home visit and calling the YMCA is on the kj list! I've got a vm I've gutta have her listen to as well! The information just comes too fast for this survivor to be able to create a notepad file on! Tomorrow night I'm meeting hics at Boston bowl! We will see how my toe and ribs do after a little exercise!

7.16.17 getting near 11pm

I scooted to Wg's today to get a med I was getting low on, was told the script had expired! They call the doc to get it renewed! I'm very happy with the service I get at Wg's! Tomorrow I've got an appt. with the kidney doc. I've gutta put a landline in to meals on wheels! For some reason I haven't got a meal in days! Time to rest my brain now so gn all :). 

7.16.17 around 11.45am

I've gutta get to Wg's today. I was gonna go yesterday but a wire came off the charger to my scooter and I didn't make it to the store and back without having to push it quite a ways :(! I made sure all the wires were good last night!

7.5.17 around 9.30am

KJ couldn't make it this morning, she's coming Friday! The only thing I've gutta get done is I've got a vm with an apt on it, just need it written in my pocket calendar! I do have a nurse from the vna coming, I'll ask if they can. If not I'll try on my own. Tonight I'm meeting hics at the Clambox in Quincy! I used to hang across the road with my Harley! Maybe see an old friend :)! 

6.30.17 after 10.30am

I went to my uncle Ralph's service yesterday and I'm trying to process all that happened! It was great to  see cousins I haven't seen in so long, just trying to think of what was said and done is so hard for this survivor!

6.28.17 around 10.10am

KJ was over and it was a great home visit! I usually create a notepad of things I could use help with but work my memory trying to remember it all without referring to it! This is part of always trying to work my brain! Oh and I do well with this too! I had to call my care manager at CCA about some dental work that was denied! I don't have her email so I had to call, now I gutta WAIT for a return call! KJ thinks she's got it, she'll mail it to me then I'll send a mail to my care manager and have nothing else I can do about this matter until she responds :)!

nearing 6pm

I got in to  a discussion on a friends page about Mikael McCarthy being found guilty of 2nd degree murder! I just believe anyone who hurts a defenseless child should be persecuted to the furthest extent of the law! Now I gutta do dinna.

6.26.17 around 9.30am

Today I've got a podiatrist appt. then Peopod is delivering my food order btw 5-7 pm! This survivor is still in mega pain :(! Hopefully I get rid of some this morning but I'm still bothered immensely by my busted ribs :(!  

6.24.17 after 7.30pm

I'm still dealing with mega pain :(! I've still gutta get to Wg's to get my vitamins, alive and v c 1,000 mgs! I did book all my trips for the week today and this wks trips cost almost $30! I've got a podiatrist and dentist apt this wk! I am a higher functioning tbi survivor! I'm living a very successful independent life and I know how to use my supports and tools that keep me independent:)!