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Showing posts from 2018

7.20.18 after 10.15pm

It's hot in my apartment! I don't wanna turn the ac on so I'm dealing with the heat the same way I did in my Quincy apartment, wearing only my boxers.Tomorrow I should scoot to Wg's for weekly shopping !

7.19.18 near 4pm

For two days now my throat has been on fire! I ran out of emeprosolve! I asked my homemaker to go to Wg's yesterday and pick up a med I had a script for and tell them I was out of emeprosolve! She forgot the emeprosolve! I just went to Wg's and had them fill a script for this! It was burning so bad last night and this morning I couldn't do hics! I just took one and it put the fire out :)! 

7.16.18 around 3.30pm

I've gutta get going on my laundry soon! It's just too hot,I did fire up my ac though,the thrifty guy I am but gutta think of my comfort! I'm getting a lot of those "junk" calls on my cell! I get the number on caller id,call back and it always says "disconnected" .

7.14,18 after 10.30pm

Peopod came with all my stuffs. Putting all the freezer stuff was a breeze after HH organized my freezer,and I kept it organized too. I did all my trips for the week too. I'm enjoying all the comments on my fb post bout living an independent life! I guess I just need lots a reassurance about lots of things!I am a proud survivor though! 

7.14,18 around 3.30pm

I was checking the status on my peopod order then started searching for items I used to get. Cube steak was an inexpensive type of steak was one! The trick is to marinate the heck out of it,so I put some teriyaki and soy sauce in my cart.  

7.13.18 8.30-9pm

I was doing a peopod order and my card kept being refused. I had plenty in my account so I called and said WTF! They asked me my security questions then unblocked it! I was able to complete my peopod order! They are delivering it tomorrow btw 3.30-9pm. So many things to go through and keep my focus. 

7.13.18 around 6pm

Today I had pt at noon. I got pt approved to walk short distance again without an assistive device ;). I used to be then I had a few falls, I am again! Still working on being approved to do it in public! Then I scooted to the store with LQ walking along with me! Before I forget, yesterday I was scooting back to hics from Quincy market and a beutiful young lady started walking with me. She started a conversation too! That just makes me feel good,a beutiful young lady comes up to spend some time with me. Tomorrow I gutta get to Wg's to get some stuffs and I gutta do my monthly  peapod order!Fed-x delivered that one handed cutting device today too.

7.12.18 around 10pm

I took a nap this afternoon,when I woke had no clue as to what happened today! I then figured out what day it is then it all came back! I'd be concerned if it didn't come back. Tomorrow I've got pt at noon then I've gutta take a scoot to the store and maybe Wg's!

7.10,18 close to 7pm

I've been to hics then right after the dentist! They finally started doing a deep cleaning! A person came in and said we're gonna start with the anasteadic!I said "why, I never had it before for a deep cleaning"!Then the doctor came in and just started scraping my teeth into my gums. I'm supposed  to have this done every year having periodontist disease! They also approved a partial whatever that is so they took impressions too! Now gutta make some dinna!  

7.6.18 after 10.40pm

Kinda a crazy day! I woke up to my door buzzer going off! It was JR from hics, nobody could get in touch with me! I was sleeping in today. It's nice to know that hics has my back! Still it through me off a tad. I had pt at noon then lied down for a bit! Tomorrow I gutta scoot to Wg's and get some stuffs but I'll get up when I get up! No pressure!















7.5.18 around 9.30am

I 'Fed' up big this morning! I was planning to have an upper endoscopy done at BED hospital in Boston done this morning but I guess I had to fast for this! I just had coffee this morning but I'm the type of person who can't lie! I went all the way into the city for nothing! I was supposed to have a companion show up too but they never showed, I wouldn't have done it a 2nd time without anesthesia anyway! 



































































































































































7.2.18 around 8.30pm

I got way too anxious  to have my ultrasound done! It's  hard for to hold my bladder given my prostate and kidney issues and I didn't want to risk embarrassment! I did struggle through getting laundry done today though and now I'm both neuro and physically beat! I'm having difficulty ambulating around cause this corn makes it painful! I tried cutting it off but I just have issues making my body parts to work in unison! :(! Tomorrow I've got hics!

7.1.18 after 8.30pm

Tomorrow I've gutta get an ultrasound done of my kidneys!  I have to drink a 24oz bottle of water at 9am then NOT empty my bladder until its completed! That will be very chalenging given my prostate issues and kidney issues!

7.1.18 after 10.20am

I got a fb text this morning from Bri saying my bank had called Ed saying "there seems to be fraudulent charges on your account"! I knew of a few I didn't recognize but I've got to wait until Monday to call about them!I've now gutta change my contact person for Citizens bank!It seems Bri knows best how to contact me, maybe I should make her that person!

6.30.18 after 9.30pm

I did all my trips for the week! I only needed to do two trips cause I'm having an upper endoscopy done on Thursday and onecare is supposed to provide transportation and a companion to go with me! Without a companion I can't get anethstesia! Last time I did it without, I'm NOT doing that again! No rec Wednesday night too :(! Hopefully this time it works out well! I tried b4 and no companion came. I won't do it again without getting put out! 

6.30.18 around 2pm

Slept in today,must have needed it! I started booking my trips for the week with Monday's trip! I've gutta get an ultrasound of my kidneys done in Quincy at Harvard Vanguard! This place,as I remember,I don't have to take my gold chains around my neck off! They've got hand held instruments that they can place exactly where they want to take a pic. I do need to scoot to Wg's today. 

6.28.19 around 6.20pm

I did hics today :)! I needed an item at the store but on the way home I needed to pee! Having had prostate cancer and kidney issues I was taking a chance of bladder leakage if I got dropped off there so I came home,left a pee,then scooted to the store!I've had to make many adjustments in living a successful independent life, and I'm smart enough to recognize what I need to do :)! Now to do dinna!

6.26.18 after4.15pm

I've been to hics today! We had groups,I'm finding I write more legible with my left hand, it just feels awkward writing with my left! The object is to write so I can read what I wrote so I've gutta keep working until the awkwardness dissipates! Then I had current issues and communication group. They're two types of communication, direct and indirect! I always try to directly communicate on just about all I want to say! I'm kinda hard to understand   anyway so why beat around the bush when I want to express my thoughts!

8.25.18 around 9pm

Today I struggled through getting all my laundry done. Tomorrow I've got hics to go to.I've got penmanship group too. That's the only time I work on my writing, shame on me! I can't get too down on myself though,look at all I CAN do after having a severe traumatic brain injury!

6.25.18 around 7.30am

I had an appt. with my podiatrist this morning but I canceled it! He's just gonna shave off my corn, I can cut it off myself with toe nail clippers! I even can cut deeper than he does. I figure I can use the $6.30,cost of rides,better!

6.20.18 around 7.45pm

I went to see the surgeon who removed my kidney stones today! I guess I had an ultrasound done recently cause he went over the results with me. He found only one very small stone and he says I don't have to do anything about it now :)! I got an appt. for another us now too! I love how at most of my appts. I get a computer read out of everything that was discussed and future appts.

6.18.18 afternoon

I overslept today and didn't get my cooler out for my meals on wheels meal in time. I did call my homemaker's co. and cancel for Wednesday cause of a doctor appt. though! Today is laundry day UGG!

6.17.18 around 10.15am

I've got an issue trying to do all my trips this week!I've got a doctors appt. Wednesday and hics at night. "The ride" doesn't handle multiple destinations well! I guess I'm gonna have to pick the most important one and cancel the other! 

6.15.18 around 4pm

I was reviewing my bank account,which I do often,and noticed a charge on there twice! It was the rear basket for my scooter!I called the distributor and told about this! They said "we had a glitch in our system, you will be refunded in a day or two"! I've really gutta stay right on top of my finances! 

6.15.18 around 2.30pm

I've had pt this morning and my peapod order came while having pt! That was kind of opportune cause then he helped me get all my refrigerated and freezer stuffs away and keep the great organizing job HH did intact ! Now I've got plenty of good stuffs to eat and drink! After pt I put the rest away then paid all my bills even the ones that give me issues paying! I only had password issues with verizon wireless  ! I chatted with a rep. and got the link to change my pw,logged on and got it paid :)!

6.14.18 around 9pm

This survivor has been one busy guy! Yesterday HH made a home visit,I had pt,my homemaker, then met hics at the pleasant tree shops in Hingham Ma! Today I had hics then to Braintree rehab to get my botox injections! I've got an issue with my I phone! It's not taking a charge. I brought it to hics today to get ideas on why. My supports all agree it's the charger cord! I used a staffs charger cord and it started charging. My Ipad mini has the same cord so after finally finding it, it's charging at home :)! I got home to find a box right outside my door. It was the rear basket I ordered from spinlife.com!I had one but the welds broke, I tryed duct tape but that was unreliable so I needed to get a new basket! My first one cost $30. This one cost $66! I need that for doing laundry,taking the trash out, carrying things back from Wg's,the store, basic household needs! Tomorrow I've got pt at noon, peapod coming 12-2 then gutta do bill paying!

6.13.18 around 10.30am

HH has been and I showed her my corn she said it feels like a nail! She then asked "do you have nail clippers"? I then gave her my nail clippers and she proceeded to clip the corn off:)! Now it feels even better than when I leave the podiatrist's office! We researched what I need to get my health proxy all set up.She's gonna get all the paperwork and will get going on that!

6.12.18 around 3.45pm

I couldn't do hics this morning cause it was way too painful wearing a sneaker on my right foot! I had to suck it up and scoot to Wg's though! They didn't have my med ready though! They called my pcp but he has yet to call them back! This is the day I set my box for the week too!

6.9.18 around 5.30pm

I've been to Wg's and had to get the liquid french vanilla coffee creamer, that's all they had!I prefer the powder but I just used it on an instant cup and it does okay! I think the powder gives me a stronger taste of french vanilla but this is doable :)!  

6.8.18 around 9pm

Tomorrow I've gutta take another scoot to Wg's!I forgot (go figure) a med I was out of! I gutta get some coffee creamer too! I couldn't find the kind I want today! I'll ask someone if I can't find it tomorrow.

6.8,18 after 3.45pm

I had pt this afternoon! I said to my pt "I think my brain injury affected me more physically than cognitively",he said "you definitely still have all your marbles,that's important to me! Then I scooted to Wg's and got a script filled! Now I gutta take it easy for a bit, neuro exhaustion!   

6.8.18 around 11.15am

The scooper bowl was great yesterday! The staff was great too,I always had some ice cream! I just missed KJ this year. This was her favorite event, I just missed seeing her gleaming face as she enjoyed this :(. Today I've got pt at noon.  

6.6.18 around 7.20pm

Workers are on my floor replacing the carpet today. I had a home visit from HH today then pt then I was gonna meet hics at the clam shack in Quincy but the workers were working right outside my door and there was no way to get by b4 my pick up time so I couldn't get my ride:(! Tomorrow I'm meeting hics at the scooper bowl in Boston :)! This will be fun fun fun! All the ice cream I can eat for $12. I will get more than my $s worth for sure! I had pt and my homemaker was here.He was training another pt! He told me he wanted to bring him here out of all his clients! I must be doing something right. New staff at hics always come here to see what a home visit should be like! That makes me the model client :)! 

6.5.18 around 9pm

I couldn't do hics today cause I got sick last night and still felt quessy this morning.I feel so much beta now! Today's highlight was taking a scoot to the store with my friend walking to get exercize. I haven't seen her in a while and she looked fantastic! The thing that bothers me is I'm in the "friend zone" with her! I've gutta find a way to get beyond that zone :)! Tomorrow I've got a busy day! HH is making a home visit after 8am, pt at noon,homemaker 12-12.30,then hics! I'm meeting them at the clam shack in Quincy for dinna and planning for July!  I like being so busy cause that way I don't think of how it sux living with a brain injury!

6.4.18 getting close to 9pm

Tomorrow I'm gonna meet hics at faneuil hall in Boston! That will be fun cause I take "the ride" all the way to a D&D's to meet them there! I'm gonna have to get a coffee,have to :)! This is a definite  scooter function! 

6.4.18 nearing 6pm

I got all my laundry done :)! It went well until I started trying to get all my shirts straightened out! That's when my spastisody really burdens me :(. I really concentrate hard on moving my hands,arms, and fingers one way and they don't cooperate, they actually fight each fight each other :(! I get it done by remembering how a family member, who never had confidence I could make it on my own post tbi! He always said to me "what are you going to do when you have to do laundry"? I always would reply "just do it"! I just did all my laundry :)!

6.3.18 around 9pm

I got up today,did my routine,start the coffee, check vm,trim beard,shower, check email,enjoy two large mugs of coffee,scooted to the store,read email again and focused on an email from HH! Good thing cause then I realized my trips for Tuesday and Thursday were all wrong! I meeting hics in the north and of Boston on Tuesday, then I'm meeting hics at the scooper bowl in Boston on Thursday! This must be the 7th or 8th year in a row I've attended the scooper bowl! This has got to be the most fun day all year! All the ice cream I can eat for a $12 donation to the jimmy fund!

5.31.18 around 9/30pm

I had a busy day! Hics then to Braintree rehab to get my pump filled with the med! They all knew about my pump going dry too! That was a situation I could have avoided too! I just didn't recognize the alarm! Live and learn I guess,that will neva happen again!

5.26.18 around 10pm

I got my Wg's scoot in today and stopped at the store to finish my errands out! I just got done doing all my trips for the week! Thursday I've got multiple destinations to  go to! After hics on Thursday I'm going to get my pump refilled! The web site dosen't let me change the destination when booking a round trip! The way I got around this was to book three one-way trips   

5.25.18 around 10.30pm

I had pt today! I just go through all my balance exercises then walk out in the hall! Thats neuro fatiguing  cause I must focus on so many things at the same time!I've got to remember to stand tall, make sure I'm not dragging my right foot and most of all don't fall! Tomorrow I need to scoot to Wgs and pick up some stuffs but gutta be careful,running low on funds! 

5.21.18 around 7.45pm

I got another set of batteries from spin-life!There really trying to keep me as a loyal customer!Now I've got new batteries for all three battery packs :)! That would come to $300 but instead it cost me $100 and an assertive email :)!Tomorrow I've got hics :)! 

5.14.18 nearing 6pm

I thought the new scooter batteries I got from spinlife were no good.I sent them an assertive email saying, I expect you to send me another pair free and I'm not paying any shipping costs! Today UPS brought a new pair :)! 

5.9.18 approaching 9am

Today KJ and HH are making a home visit then I'm gonna go to hics for karaoke night:)! I wanna do "hard to handle" by the black crows and "behind blue eyes" by the who! I'm still thinking about how well I did yesterday at the neurologist :)! 

5.8.18 after 9.30 pm

I had a busy day! I went to hics from there I went to Braintree rehab for a neurologist appt. I was very happy with the way I performed in the memory tests:)! This survivor even did well when my concentration was altered! I quickly repeated the words I was asked to remember! I did really well! This from a guy who's never satisfied,always thinking I can do better! There is no better than I did today, I'm very proud of how I did today :)!

5.6.18 around 9.30pm

I got my writing task  done today. That took a lot out of me! I've got to deal with the frustration of my hand not operating the way I concentrate hard to make it :(! This takes so much out of me!  

5.6.18 around 10am

This is Sunday my day off! The only thing I've gutta do will involve a bit of writing.That is very frustrating for me! I can take my time but once it's there it's there for good! All my worries are gone, my scooter appears to work great! I'm thinking of buying another set of batteries for one of my other battery packs! That will have to wait till my check comes though! 

5.5.18 around 5.45pm

My scooter is working fine now :)! I scooted to Wg's without a problem :)! The power indicator never left full power :)! It's a good thing too cause a med was ready for me! My furinal,would have suxed if I got a migrane! Now gutta see what I got for dinna  !

5.4.18 around 9pm

I had a hunch that maybe my scooter chargers charging light doesn't illuminate cause they're fully charged so I used it to go down to get my snail mail, plugged in the charger and wala, the charging light illuminated :)! I am one very smart tbi survivor! 

5.4.18 after 3pm

HH was here making a special home visit to try to get my new scooter bateries to accept a charge and to help with my blog issues. We got my blog issues all figured out,as you can tell but my batteries are either junk or I need a new battery box! I'm a little bit bummed about my scooter but I'm super happy about my blog;)!

4.18.18 around 6pm

I've had a busy day! 1st KJ made a home visit and I was given the okay to share the disheartening news she told me a while ago. KJ is leaving the program :(! She's gonna go back to school and earn her master's and get married! The man she's marrying is a military man and is going to Tennessee so she's going too:(. This is a bummer for me but I'm real happy for her. I've been with KJ for nine yrs now and I'm gonna miss her so so much:(! She knows me better than anyone! All I can say is I wish her the very best and have no idea of how much I enjoyed the time I had the pleasure of working with her! Then I had a nurse come by to look at my bum,she got right on the phone to my pcp's office and made an appt. to have it looked at! I'm gonna see a physician's assistant Friday @ 2pm! I just want not to be in pain! Then my homemaker came! Now to heat up dinna, oh just want to thank KJ for everything She's done, you are the very bestest!

4.17.18 after 9.15am

I couldn't do hics today cause I got an email from UPS saying a package is being delivered today! It's gutta be my scooter batteries :)! That's very important to my freedom living alone! Imagine being without a car, that's kinda like me not being able to use my scooter! 

4.14.18 after 6.10pm

I can remember clearly what happened now! Michelle was late picking her son up so I may have been going fast! I saw an old beat up car on a side street that looked as if was gonna pull out and cut me off! So I made an invasive maneuver and tried to turn down that same street. He didn't move which left me no room to complete my turn! I knew I wasn't gonna make it so I tried to make a controlled skid   but lost control and smashed into the car! I remember being dazed and hearing voices saying "I was stopped and he just turned right into me! Then nothing,I didn't remember this till months after I woke from the coma! I remember things while being unconscious too but that will wait till another post.  

4.13.18 after 9pm

Today a nurse came ova around 9am then a pt @ 10am! She gave me new exercises but the old ones I do seem to be much more chalenging so I'm gonna stick with the old ones! After all that I had to take a neuro rest! Tomorrow Peopod is coming btw 10-1! I need this order too! With my scooter batteries being dead I've got little here! Thankfully Wg's had no meds ready during my scooter melt down! 

4.12.18 after 530pm

I placed an order with Preopod and they are delivering it Saturday btw 11am-1pm! My scooter needing bateries made me get things I go through quick in two's! I did get an email from spin life saying my new batteries have been shipped and I should receive them on Tuesday! I feel trapped here without the use of it! 

4.12.18 after 9.40am

I'm not doing hics today cause they are doing "the big apple circus" and I don't have the cash flow to go :(! I have the $ but this is where not having an operating scooter hurts! If I did I could scoot to Wg's and get cash.:(

4.12.18 after 9.20am

A lot has been happening I'm working on processing it all! Lissy msged me today to share she's going back to school to earn her masters degree :)! This girl really  makes her daddy proud! Yesterday KJ made a home visit and brought some distressing news which I'm not at liberty to share yet but got me kinda bummed out :(! This survivor will carry on though doing the best I can to progress!

4.10.18 around 10.20am

Strange thing just happened, a driver from 1st class transportation came to my door and said he was taking me  to Boston! I've got nothing in my pocket calendar that says I'm supposed to go to Boston today, weird! 

4.7.18 around 9/15pm

Tomorrow I'm gonna attempt to scoot to Wg's! I should also do a load of laundry just so I'm not inundated with having to do so much on Monday!  Well if I get to it great and if I don't, Monday I'll have to do it all! This survivor is gonna fight the anxiety till it gives up! 

4.5.18 near 5.30pm

I started to scoot to the store and the power indicator was flickering, with my sore toe and ribs and now tail I didn't want to have to push it even a foot! I came back home and connected the charger!The power light was on but not the charging light! I've got spare everything for my scooter so I put on my spare battery pack! This had a low power reading too! I put the charger on and the power  indicator didn't read charging!I tried just about everything and now it says charging :)! I've still gutta get to the store but I'm gonna let it charge for 30-40 mins now!