Jamie's Blog

I sent "the ride" an email concerning my online account! This is what I wrote , Hello, I had to recertify my eligibility for the ride last week and the same issue as last year has arrison this year! My online account seems to be all screwed up! Last year I went through three IT guys, they couldn't diagnose  the issue then I emailed the mbta directly and finally a lady was able to fix the issue! I'm living with a traumatic brain injury and my memory doesn't work as a non injured persons does so it's imperative that I use all tools available to me  to be prompt for the drivers arrival at my apartment! Please look at this as an urgent issue! have a great day Jamie

This survivor is very frustrated this morning! I had to recertify my eligibility for "the ride" last week and I told them there last time I did this my online account got screwed up, try to make sure it doesn't happen again! I was able to ck my times last time but not able to book a trip. Now I can't even sign in :(! 

Roast beast(beef) for dinna tonight! I had to cut it up and thats very chalenging for this survivor cause my hands still don't work together, they fight each other:(! It was still a very nice meal! 

I've been to the doctor and he just asked me how my shoulder feels now, I said "it feels fine now"! No need for a cortisone shot now, I just call him if it starts to irritate me again! This survivor has great self healing powers :)! Now to heat up my meal for today! 

Today I'm gonna go to the doctor who diagnosed my  pinched nerve in my shoulder and KJ makes a home visit after 8.30am! I pray my transportation works out better than yesterday's! I went to hics on "the ride" that worked out fine then I was gonna go to therapy using transportation provided by my insurance provider and they pulled a no show! What a fiasco that was! I had two supports calling them and they kept on saying "be there shortly"! It got to be passed my appointment time and finally they showed! At that point I had him drive me home! Lesson learned, never use them again!   

This survivor's anxioty reached levels today it hasn't reached since I lived in Scituate! I was already anxious at the start of the day cause I didn't have a return trip from Braintree rehab! I was told by a staff member at hics if this sort of thing happens always come to hics, before I would have canceled everything! I get to hics, tell KJ my issues and she says not to worry she would cab me home! Then I was thinking I've got my scooter. It comes apart to fit in a trunk of a car but I've got problems taking it apart myself! I get to therapy early and Leslie takes me in early so I'm through early, it's a little after 3pm cab is not coming till 4pm! So I call KJ at hics, let her know I'm done, she calls the cab co. They say 15 minutes they will be there! 15 Minutes go by still no cab so again I call KJ, she calls the co. again and again 15 minutes! Meanwhile my anxioty is bubbling over! They came then I had to figure out how to get it apart. The great th...

I'm real anxious about my trips today! I've got hics then therapy but I think KJ and I booked trips for therapy through my insurance provider but no call from them.

I'm thinking about slowing down on my blogging! There are days it just feels like too much of a chore. The thought of stopping completely came across my mind! Then I wouldn't be filling my obligation to tbi survivors around the whole world. I'm gonna keep blogging just when it feels like a chore I'll take a day or days off from blogging! Today the plan is to go to the YMCA to work on me :)!

Tomorrow I'm gonna go to the YMCA and do my resistance training! It seems like forevea since I've been! I'm gonna say I wanna start swimming laps on Mondays! I've gutta get buff and swimming laps will help greatly :)!

Never made it to the beach today :(! Somehow my trips got canceled :(! This has happened before, I check on them the night before, I check again the following morning and they say canceled! I ended up doing laundry and after I finished took a ride to the store! I booked most of my trips for the week but I need to add value to my account then book the rest! I've got a phone # to call and my value is recognized immediately! If I add value online it takes two business days! I think I just need a trip home from therapy! I don't know if KJ and I did this through my insurance provider either! I can't seem to hold much information in my injured brain :(! 

Tomorrow LQ and I are gonna go to Nantasket beach via "the ride"! I'm gonna have to use whateva kind of sun lotion she's got cause mine is way too old! We're gonna do lunch someplace too :)!

I guess I passed the insurance inspection! She looked all around my place and gave me suggestions on how I could organize it even better. She was very impressed by how I walk around this place without any assistive device at all :)! I also impressed her by being capable of managing my own meds :)! That includes not only filling my med box every week but getting the scripts refilled when I run out of a med!  

Today KJ is coming around 10.30am cause my apartment is gonna be safety checked by my insurance provider! 

Today I was a very busy man! Hics was great then I went to pt at Braintree rehab so I spent the whole day doing my job, working on me :)!

I've got a busy day today! I go to hics then I've got pt at Braintree rehab! My last trip starts at 5.30pm.

I booked trip on "the ride" for therapy tomorrow but I think KJ and I had booked all my trips to and from therapy through one care transportation! I'll just wait to see if the other trans. co. calls then it's easy to cancel my trips with "the ride"! I'm liking getting my dinners delivered every day! I'm eating one balanced meal a day now :)!

My day got all "f"ed up! "the ride" arrived this morning to take me to Charlestown to recertify my eligibility. He buzzed me and I said through the intercom "I'll come down  now". I get my scooter and proceed to the elevator! The elevator is out of order! I call "the ride",explain my situation and say "I can use the stairs but I'll need help. I can't carry my walker and manage the stairs at the same time! Time passes by and no help came so I've gutta reschedule my certification! Bayada home health care called and said Jessica can't make it today what about tomorrow? I know I've got hics then therapy so I said "that's no good, they were gonna ask Jessica if she can do Friday! This sux, too much information for my injured brain but I'm doing it :)! 

I fought through my feeling bummed and I'm ready now to concur  the world! Tomorrow I've gutta go in to Boston (Charlestown) to recertify my eligibility for "the ride"! The last time I did this I couldn't use my online account for two months! Then it worked to check my times but wouldn't let me book a trip or add value to my account! I can only do everything in my power to unsure this doesn't happen again! That is to let everyone I meet with tomorrow to share my concerns!

I had planned to meet LQ at the pool today but I was overcome with a bout of depression! The same old thing, what my life would be like now if not for my brain injury! In "01" I made over $150,000 for the year, kids all grown now so no child support and that was $521 a week! I'm sure I'd have a new Harley, car, and probably a condo at Marina bay in squantum! This is far from easy to overcome but I will beat this! 

I've been to the tenets meeting and Kim(the hot babe that lives in a townhouse here) put my mind at ease by saying "they can't charge us for all the things they said they were in the last bulletin cause of safety reasons :)!"I've had to change a lite in my kitchen before and had to stand on a chair while backing the screws out holding the globe on then   put it down, change the bulb, then attach the globe and I've got serious balance issues! I was just explaining this to LQ and she didn't believe I did this. That explains the degree of difficulty it entails to complete this task but I never tell a lie, I did it all by myself :)!

I didn't do the YMCA today cause it was more important I get to Wg's! I've got a tenant's meeting at 5pm and I didn't want to get my anxiety going crazy on me! I've learned from the years living with tbi what triggers my anxiety and how I can prevent this awful feeling of being anxious!     

I'm doing the YMCA today :)! My pickup to go is around noon return is 2.23pm so I plan on getting home by 4pm then I should take a ride to Wg's to get an ice pack and a heating pad! I learned from therapy it sooths my shoulder to ice it after working it!

I've been texting with LQ this afternoon and I receive her texts on my phone then send a new text from my computer! Getting the texts seems to be delayed on my computer! It's just so much easier using  a real keyboard instead of an on screen  keyboard!

I got up at 6am this morning cause I had a 7.05 pickup to go to hics but I felt like shxt so I couldn't do hics and I had pt after, I got so confused cause KJ and I had booked transportation through onecare for therapy but I couldn't book a trip for the next day, they have to have 2 days notice! Now that the fog is clearing around my brain I'm feeling better! 

Tomorrow I'm doing hics and from there I go to pt at Braintree rehab! My pickup time to come home is not till 5.30pm! Long day but this is good, I like being busy.

I've been to my podiatrist and he was even wowed by this thing that seems to keep reappearing on my right little toe! He dose sell a topical substance that will fight corns but with my check due tomorrow I couldn't risk spending the $! It's so great being free. I got home and nuked a cup of instant coffee :)! 

Today I'm going to see my podiatrist and not a moment too soon! The corn on my right little toe is killing me and looks nasty!

I got all my trips booked for this week! Now it is costing me over $9/wk! That's b/c I've got therapy and hics on both Tuesday and Thursday! Thankfully my check comes Tuesday and clears by Wednesday! I'm thinking of having my homemaker, Jessica start my laundry tomorrow! Booking my trips got me neuro exhausted! 

I slept in this morning and that's why I try to book Monday's trips on Saturday, cause it's now after 12 and you can't book trips for the next day after noon! I've still gutta book the rest but I've got time to do this ;)!

I didn't do much of anything today except put value on my laundry card and book Monday's trips to my podiatrist! I'm gonna call the Holbrook taxi and get a price on going to Border st. in Scituate and back. I've got another check due before August 5th so as long as I watch my funds closely I'll certainly be able to afford this to get to my 40th class reunion :)!

I have not blogged since the 7th! I've got no clue as to what I've done the past few days :(! I know I've been to the dentist this week cause I have difficulty chewing my food, that and my right little toe is hurting bad! Enough ranting, I'm free and living :)!

Tomorrow I plan to go to the YMCA to do my resistance training and I'm hoping to relieve the pain  in my left shoulder!

I've been to hics then I went to pt from hics! I won't do my trips like this again unless my pt appt. is earlier than it was today! I should have come home then go to pt! Way too much WAITING at hics for my pickup to go to Braintree rehab! I've got my Iphone to fool around with during these down times but I'm having charging issues with it! Tonight I'm gonna charge it right from an ac outlet and bypass my computer!

KJ makes a home visit this morning then I go to my dentist to have a tooth yanked.

I ended up booking Thursday's trips, go to hics, go to Braintree rehab for therapy from hics then home from Br! There's just a lot of time btw hics and Br. I could have come home in that period of time but "the ride" had a fare increase! Not a lot but still why waste my limited funding! I'm getting a food order from peapod btw 7-9 tonight! I'm gonna wait till it arrives to do some dinna!

I've been to Braintree rehab and had my pump filled up and I thought I had pt too but I went to check in and they had no record of an appointment for me! Now it's around 11am and my pick is not due till around 6pm! I call "the ride" to say I'm ready now and much to my surprise a driver came and I got home around 2pm :)! It's not like me to "f" up on my appointments so I got home and checked my mail and there was a mail subject "appointment change" and sure enough my appt. got changed to Thursday I just neglected to cross it out in my pocket calendar! The good thing is I was able to get a print out of all my pt appointments! The great thing that happened though my "f" up was I bumped in to my case manager from therapy in Plymouth :)!See LL and I had a lot in common, she plays adult women's ice hockey  and I did men's ;)!

I've been to Braintree rehab and had my pump filled up and I thought I had pt too but I went to check in and they had no record of an appointment for me! Now it's around 11am and my pick is not due till around 6pm! I call "the ride" to say I'm ready now and much to my surprise a driver came and I got home around 2pm :)! It's not like me to "f" up on my appointments so I got home and checked my mail and there was a mail subject "appointment change" and sure enough my appt. got changed to Thursday I just neglected to cross it out in my pocket calendar! The good thing is I was able to get a print out of all my pt appointments! The great thing that happened though my "f" up was I bumped in to my case manager from therapy in Plymouth :)!See LL and I had a lot in common, she plays adult women's ice hockey  and I did men's ;)!

Tomorrow I'm going to Braintree rehab to get my pump filled, then lata in the day I've got pt there! This pt is for my shoulder! The pain has subsided quit a bit, I've just gutta explain when I do my resistance training it works to relieve the pain! I still gutta do my trips for Thursday I'm thinking I'll go to hics, come home, then go to Braintree rehab for pt!

I was shocked, Jessica (my homemaker) came today! I had her start my laundry and I went down to get it after it finished drying! Then I got the hard, for me, part done of straitening and folding then putting it away! That's still the most challenging task I must be able to do! I live in a state of confusion and getting my laundry right after it's gone through the dryer is so confusing and frustrating! I concentrate on moving my limbs and fingers a certain way and it just doesn't happen! Now I'm through with that :)! 

I got all my trips for the week done except for Thursdays trips. I've got pt late in the day and I haven't yet decided to 1st go to hics, come home then go to pt or go right from hics. It will only cost me $3 for an extra trip so I think I'll come home from hics and go to pt from home. This will confuse "the ride" big time!

I just can't get my tail to do anything today :(! I was gonna go to the pool but I had no get up and go today! I checked the YMCA website and that's closed tomorrow and I think my homemaker won't come cause it's the 4th so I've got another day to do my Sunday tasks! I'm taking today off:)!

This miserable corn stopped me from trying to tough it out and go to the YMCA today :(! I got a bandaid that has like a felt donut in it but I put one on this morning but no soothing effect what so eva :(! You'd think there'd be some kind of topical solution that would burn the sucker off! I guess I'm just gonna have to deal with this awful pain :(!